%0 Book %A National Academies of Sciences, Engineering, and Medicine %E Berkower, Carol %E Ulman, Abigail %E Reich, Alex %T Communities, Climate Change, and Health Equity: Proceedings of a Workshop–in Brief %D 2022 %U https://nap.nationalacademies.org/catalog/26435/communities-climate-change-and-health-equity-proceedings-of-a-workshop %> https://nap.nationalacademies.org/catalog/26435/communities-climate-change-and-health-equity-proceedings-of-a-workshop %I The National Academies Press %C Washington, DC %G English %K Environment and Environmental Studies %P 12 %X As the effects of climate change become more widespread and significant, communities least able to respond are bearing the largest burden. In the United States, communities disadvantaged by a legacy of racial segregation and environmental injustice struggle with disparate health outcomes, are vulnerable to the effects of climate change (e.g., severe flooding in low-lying areas and extreme heat in urban neighborhoods), and lack sufficient resources to recover from and rebuild for resilience against future events. On October 12 and 14, 2021, the 2-day virtual workshop "Communities, Climate Change, and Health Equity - A New Vision" brought together environmental health experts, resilience practitioners, climate scientists, and people with lived experience to discuss the disproportionate impact of climate change on communities experiencing health disparities and environmental injustice. During the workshop, the first in a four-part series, 41 speakers shared their perspectives on the topic and suggested specific actions that decision-makers can take to address the intersecting crises of climate change and health inequity. This publication summarizes the presentation and discussion of the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Johnson, Anne %E Reich, Alex %T Communities, Climate Change, and Health Equity—State-Level Implementation: Proceedings of a Workshop—in Brief %D 2022 %U https://nap.nationalacademies.org/catalog/26693/communities-climate-change-and-health-equity-state-level-implementation-proceedings %> https://nap.nationalacademies.org/catalog/26693/communities-climate-change-and-health-equity-state-level-implementation-proceedings %I The National Academies Press %C Washington, DC %G English %K Environment and Environmental Studies %P 12 %X Because of historic and ongoing discriminatory policies and practices, certain populations - namely people of color, Indigenous people, and low-income communities - disproportionately suffer from the adverse impacts of extreme weather and other disasters that are exacerbated by climate change. To examine actions that could help improve climate-related health outcomes in disproportionately impacted communities, the Environmental Health Matters Initiative, a program spanning all major units of the National Academies of Sciences, Engineering, and Medicine, convened a two-day workshop Communities, Climate Change, and Health Equity - State-Level Implementation on May 24 and 26, 2022. The workshop brought together representatives from state and federal agencies, universities, community-based organizations, state and national advocacy organizations, foundations, and private sector organizations. This publication highlights the presentations and discussion of the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Anderson, Kat M. %T COVID-19, Health Equity, and the Asian American, Native Hawaiian, and Pacific Islander Communities: Proceedings of a Workshop—in Brief %D 2022 %U https://nap.nationalacademies.org/catalog/26700/covid-19-health-equity-and-the-asian-american-native-hawaiian-and-pacific-islander-communities %> https://nap.nationalacademies.org/catalog/26700/covid-19-health-equity-and-the-asian-american-native-hawaiian-and-pacific-islander-communities %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 14 %X Communities of color have been among the hardest hit by the COVID virus. Less is known, however, about infection and vaccination rates in the different populations that make up the Asian American, Native Hawaiian, and Pacific Islander (AA/NH/PI) communities. In at least 16 states that do disaggregate their data, Native Hawaiians and Pacific Islanders have the highest mortality rates. Additionally, reports of incidents of xenophobia and violence against AANHPI community members, particularly women, became more frequent during the pandemic. Finally, there is a lack of data on AANHPI health and well-being in comparison to other groups, which will make it more difficult to correct these disparities in the future. The National Academies of Sciences, Engineering, and Medicine's Roundtable on the Promotion of Health Equity planned and hosted a 2-day public workshop in December 2021 titled COVID-19, Health Equity, and the Asian American, Pacific Islander, and Native Hawaiian Communities. The workshop focused on the impact of the COVID-19 pandemic and the unique obstacles faced by the AANHPI communities in achieving health equity. This Proceedings of a Workshop-In Brief summarizes the events covered in the workshop discussions. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Balogh, Erin %E Amankwah, Francis %E Wizemann, Theresa %E Nass, Sharyl %T Promoting Health Equity in Cancer Care: Proceedings of a Workshop %@ 978-0-309-69189-5 %D 2022 %U https://nap.nationalacademies.org/catalog/26661/promoting-health-equity-in-cancer-care-proceedings-of-a-workshop %> https://nap.nationalacademies.org/catalog/26661/promoting-health-equity-in-cancer-care-proceedings-of-a-workshop %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 88 %X Despite advances in the delivery of high-quality cancer care and improvements in patient outcomes in recent years, disparities in cancer incidence, care, and patient outcomes persist. To examine opportunities to improve health equity across the cancer care continuum, the National Cancer Policy Forum and the Roundtable on the Promotion of Health Equity hosted a public workshop, Promoting Health Equity in Cancer Care, on October 25 and October 26, 2021. This virtual workshop featured presentations and panel discussions on topics that included: opportunities to improve equitable access to affordable, high-quality cancer care; strategies to identify and address the intersectionality of structural racism and implicit bias in cancer care delivery; the potential for quality measurement and payment mechanisms to incentivize health equity in cancer care delivery; and clinical practice data collection efforts to better assess and care for people living with and beyond cancer. This publication summarizes the presentation and discussion of the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Savaglio, Lauren %E Baciu, Alina %T Harnessing the Value of Co-Creating and Stewarding Places for Health, Equity, and Well-Being: Proceedings of a Workshop %@ 978-0-309-68313-5 %D 2022 %U https://nap.nationalacademies.org/catalog/26212/harnessing-the-value-of-co-creating-and-stewarding-places-for-health-equity-and-well-being %> https://nap.nationalacademies.org/catalog/26212/harnessing-the-value-of-co-creating-and-stewarding-places-for-health-equity-and-well-being %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 80 %X The Roundtable on Population Health Improvement of the National Academies of Sciences, Engineering, and Medicine convened a workshop at Hunter College in New York City, New York on February 6, 2020, to explore the value of co-creating and keeping inclusive healthy spaces. The workshop was designed to understand and highlight the economics of inclusive placemaking and to explore its value in improving health, equity, and well-being. Placemaking (the work of creating livable, vibrant, or quality places, especially public places) draws on various traditions of community development, arts and culture, regional planning, and civic engagement, combining different disciplinary perspectives into a creative way of shaping public spaces, land use, commerce, transportation, housing, and social fabric. The workshop (1) examined the economics of this work, (2) described how inclusive placemakers gather resources to do their work, and (3) explored the social and economic value they are able to generate when places are designed with health, equity, and well-being in mind. This publication is a summary of the presentations and discussions that occurred during the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Anderson, Kat M. %T COVID-19 Vaccines: Studying Historical Successes (and Failures) for Equity-Centered Approaches to Vaccinating Indigenous Communities, Undocumented Immigrants, and Communities of Color: Proceedings of a Workshop—in Brief %D 2022 %U https://nap.nationalacademies.org/catalog/26622/covid-19-vaccines-studying-historical-successes-and-failures-for-equity %> https://nap.nationalacademies.org/catalog/26622/covid-19-vaccines-studying-historical-successes-and-failures-for-equity %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 7 %X Communities of color experience significantly higher rates of COVID-19 infection compared to White Americans, but have gotten vaccinated at a slower pace. The National Academies of Sciences, Engineering, and Medicine's Roundtable on the Promotion of Health Equity hosted a public webinar to discuss lessons learned from the COVID-19 pandemic and previous vaccination efforts that could improve vaccination rates among communities of color. Five participants including Indigenous tribal authorities, state public health workers, labor advocates, and academics discussed the history of vaccination and disease control efforts for minority populations during and before the COVID-19 pandemic. This Proceedings of a Workshop-In Brief summarizes the content of the workshop discussions. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Maitin-Shepard, Melissa %T Models for Population Health Improvement by Health Care Systems and Partners: Tensions and Promise on the Path Upstream: Proceedings of a Workshop %@ 978-0-309-26532-4 %D 2022 %U https://nap.nationalacademies.org/catalog/26059/models-for-population-health-improvement-by-health-care-systems-and-partners %> https://nap.nationalacademies.org/catalog/26059/models-for-population-health-improvement-by-health-care-systems-and-partners %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 94 %X The Roundtable on Population Health Improvement of the National Academies of Sciences, Engineering, and Medicine hosted a public workshop on September 19, 2019 titled Models for Population Health Improvement by Health Care Systems and Partners: Tensions and Promise on the Path Upstream. The term upstream refers to the higher levels of action to improve health. Medical services act downstream (i.e., at the patient level) in improving population health, while such activities as screening and referring to social and human services (e.g., for housing, food assistance) are situated midstream, and the work of changing laws, policies, and regulations (e.g., toward affordable housing, expanding healthy food access) to improve the community conditions for health represents upstream action. The workshop explored the growing attention on population health, from health care delivery and health insurance organizations to the social determinants of health and their individual-level manifestation as health-related social needs, such as patients' needs. The workshop showcased collaborative population health improvement efforts, each of which included one or more health systems. This publication summarizes the presentations and discussions from the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %T Rapid Expert Consultation on Critical Federal Capabilities Needed to Evaluate Real-World Safety, Effectiveness, and Equitable Distribution and Use of Medical Countermeasures During a Public Health Emergency %D 2022 %U https://nap.nationalacademies.org/catalog/26574/rapid-expert-consultation-on-critical-federal-capabilities-needed-to-evaluate-real-world-safety-effectiveness-and-equitable-distribution-and-use-of-medical-countermeasures-during-a-public-health-emergency %> https://nap.nationalacademies.org/catalog/26574/rapid-expert-consultation-on-critical-federal-capabilities-needed-to-evaluate-real-world-safety-effectiveness-and-equitable-distribution-and-use-of-medical-countermeasures-during-a-public-health-emergency %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 28 %X The COVID-19 pandemic has highlighted the importance of having access to real-world data and evidence to monitor and assess medical countermeasure (MCM) use and performance so policy makers can make more effective and rapid public health decisions, protect population health, and save lives. During public health emergencies, the use of MCMs, such as therapeutics, vaccines, and diagnostics, can be made available to the public under a range of regulatory access mechanisms. This Rapid Expert Consultation was produced by individual members of the Standing Committee for CDC Center for Preparedness and Response. Its aim is to review and propose modifications to an initial draft list of critical federal capabilities presented by the Centers for Disease Control and Prevention and the U.S. Food and Drug Administration that are needed to evaluate real-world safety, effectiveness, equitable distribution, access, and use of MCMs during a public health emergency. This effort draws from expert input, published literature, and lessons learned from previous public health emergencies, as well as the ongoing COVID-19 pandemic. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E McHugh, Kelly %E Martinez, Rose Marie %E Alper, Joe %T Adoption of Health Literacy Best Practices to Enhance Clinical Research and Community Participation: Proceedings of a Workshop—in Brief %D 2022 %U https://nap.nationalacademies.org/catalog/26506/adoption-of-health-literacy-best-practices-to-enhance-clinical-research-and-community-participation %> https://nap.nationalacademies.org/catalog/26506/adoption-of-health-literacy-best-practices-to-enhance-clinical-research-and-community-participation %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 12 %X Clinical research is critical to developing new treatments and therapies for patients. To maximize societal benefit and health equity, it is important that clinical research information be accessible and inclusive, and participants should be representative of the patient population. To explore the role that patient comprehension of clinical research can have in delivering high-quality clinical care and in increasing the diversity of the populations enrolled in clinical research, the National Academies of Sciences, Engineering, and Medicine's Roundtable on Health Literacy held a virtual public workshop on October 28, 2021. Workshop attendees discussed current and promising resources and approaches for ensuring that the public receives clinical research information in accessible language that promotes health literacy. They also discussed strategies for integrating clinical research information into various care and community settings to improve research awareness and engagement. This Proceedings of a Workshop-in Brief highlights the presentations and discussions of the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Nicholson, Anna %E Haag, Tamara %T Community Power in Population Health Improvement: Proceedings of a Workshop %@ 978-0-309-09349-1 %D 2022 %U https://nap.nationalacademies.org/catalog/26306/community-power-in-population-health-improvement-proceedings-of-a-workshop %> https://nap.nationalacademies.org/catalog/26306/community-power-in-population-health-improvement-proceedings-of-a-workshop %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 172 %X To explore issues related to community-driven power-building efforts to improve population health, the Roundtable on Population Health Improvement of the National Academies of Sciences, Engineering, and Medicine hosted a virtual public workshop, "Community Power in Population Health Improvement", on January 28 and 29, 2021. Participants discussed the different components and dimensions of community-led action around different population health improvement topics such as education, transportation, environmental health, healthy eating, and active living, among others. This Proceedings of a Workshop summarizes the presentations and discussion of the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Graig, Laurene %E Alper, Joe %T Caring for People with Serious Illness: Lessons Learned from the COVID-19 Pandemic: Proceedings of a Workshop %@ 978-0-309-68958-8 %D 2022 %U https://nap.nationalacademies.org/catalog/26596/caring-for-people-with-serious-illness-lessons-learned-from-the %> https://nap.nationalacademies.org/catalog/26596/caring-for-people-with-serious-illness-lessons-learned-from-the %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 128 %X The COVID-19 pandemic has highlighted existing weaknesses in the United States health care system, while creating a new set of challenges related to caring for people with serious illness. The National Academy of Sciences, Engineering, and Medicine's Roundtable on Quality Care for People with Serious Illness hosted a three-part workshop to explore the initial responses to the pandemic by health care teams providing care to people with serious illness, the impact of the pandemic on the health care workforce, the use of telehealth, issues related to clearly communicating with the public about health emergencies, and policy opportunities to improve care for people with serious illness. Issues related to health equity were discussed throughout the three webinars. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Snair, Megan %E Attal-Juncqua, Aurelia %E Wollek, Scott %T Evolving Crisis Standards of Care and Ongoing Lessons from COVID-19: Proceedings of a Workshop Series %@ 978-0-309-68879-6 %D 2022 %U https://nap.nationalacademies.org/catalog/26573/evolving-crisis-standards-of-care-and-ongoing-lessons-from-covid-19 %> https://nap.nationalacademies.org/catalog/26573/evolving-crisis-standards-of-care-and-ongoing-lessons-from-covid-19 %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 114 %X Crisis Standards of Care (CSC) inform decisions on medical care during a large-scale crisis such as a pandemic or natural disaster, eliminating the need to make these decisions at the bedside without protections or guidance. Numerous points throughout the COVID-19 pandemic have demonstrated the necessity of this type of crisis planning. The National Academies of Sciences, Engineering, and Medicine Forum on Medical and Public Health Preparedness for Disasters and Emergencies convened a series of public workshops to examine the experiences of healthcare providers during the COVID-19 pandemic and identify lessons that can inform current and future CSC planning and implementation. The workshops examined staffing and workforce needs, planning and implementation of CSC plans, and legal, ethical, and equity considerations of CSC planning. Topics of discussion included improving coordination between the bedside and boardroom, increasing buy-in from elected officials, expanding provider engagement, and addressing health equity issues. This publication summarizes the presentation and discussion of the workshops. %0 Book %A National Academy of Engineering %A National Academies of Sciences, Engineering, and Medicine %T New Directions for Chemical Engineering %@ 978-0-309-26842-4 %D 2022 %U https://nap.nationalacademies.org/catalog/26342/new-directions-for-chemical-engineering %> https://nap.nationalacademies.org/catalog/26342/new-directions-for-chemical-engineering %I The National Academies Press %C Washington, DC %G English %K Engineering and Technology %P 368 %X Over the past century, the work of chemical engineers has helped transform societies and the lives of individuals, from the synthetic fertilizers that helped feed the world to the development of novel materials used in fuels, electronics, medical devices, and other products. Chemical engineers' ability to apply systems-level thinking from molecular to manufacturing scales uniquely positions them to address today’s most pressing problems, including climate change and the overuse of resources by a growing population. New Directions for Chemical Engineering details a vision to guide chemical engineering research, innovation, and education over the next few decades. This report calls for new investments in U.S. chemical engineering and the interdisciplinary, cross-sector collaborations necessary to advance the societal goals of transitioning to a low-carbon energy system, ensuring our production and use of food and water is sustainable, developing medical advances and engineering solutions to health equity, and manufacturing with less waste and pollution. The report also calls for changes in chemical engineering education to ensure the next generation of chemical engineers is more diverse and equipped with the skills necessary to address the challenges ahead. %0 Book %A National Academies of Sciences, Engineering, and Medicine %T Roundtable on Genomics and Precision Health: 2021 Annual Report %D 2022 %U https://nap.nationalacademies.org/catalog/26570/roundtable-on-genomics-and-precision-health-2021-annual-report %> https://nap.nationalacademies.org/catalog/26570/roundtable-on-genomics-and-precision-health-2021-annual-report %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 12 %X During 2021, the Roundtable on Genomics and Precision Health explored important topics including diversity, equity, inclusion, and justice in the genetics and genomics workforce; case studies of innovation in the genetics and genomics spaces that have led to creative ways to approach clinical care; and barriers and facilitators of the adoption of genomics-based tools in clinical care. As part of the strategic plan that was adopted in 2020, the work of the Roundtable is centered on four main areas: Innovation, Dialogue, Equity, and Adoption. This annual report summarizes the activities of the roundtable in 2021. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Bell, Crystal J. %E Johnson, Anne Frances %T The Use of Telehealth for Disability Evaluations in Medicine and Allied Health: Proceedings of a Workshop %@ 978-0-309-69150-5 %D 2022 %U https://nap.nationalacademies.org/catalog/26650/the-use-of-telehealth-for-disability-evaluations-in-medicine-and-allied-health %> https://nap.nationalacademies.org/catalog/26650/the-use-of-telehealth-for-disability-evaluations-in-medicine-and-allied-health %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 98 %X Over the past few years the common use of telehealth technology has been rapidly expanding. While remote models of care have been successfully used in rural communities for decades, the adoption of telehealth rapidly expanded during the COVID-19 pandemic, narrowing some gaps in care access and equity while exacerbating health care inequities in other ways. At the request of the Social Security Administration, the National Academies hosted a workshop on March 9 and 10, 2022 to examine the use of telehealth for patient evaluation. The workshop explored the evolution of telehealth and commonly used terminology, the impact of inequities in digital access, privacy and cybersecurity concerns, its use in a variety of allied health and medical specialties for patient evaluation, and interstate licensure related to providing telehealth care. This publication provides a high-level summary of the presentations and discussions from the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Olson, Steve %E Anderson, Kat M. %T The Impact of Juvenile Justice System Involvement on the Health and Well-Being of Youth, Families, and Communities of Color: Proceedings of a Workshop %@ 978-0-309-69053-9 %D 2022 %U https://nap.nationalacademies.org/catalog/26623/the-impact-of-juvenile-justice-system-involvement-on-the-health-and-well-being-of-youth-families-and-communities-of-color %> https://nap.nationalacademies.org/catalog/26623/the-impact-of-juvenile-justice-system-involvement-on-the-health-and-well-being-of-youth-families-and-communities-of-color %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 96 %X Involvement with the juvenile justice system can impact young people's physical and mental health and well-being throughout their lives, as well as the health and well-being of their families and communities. Youth of color are more likely to become involved with the juvenile justice system, and suffer worse outcomes in sentencing, during incarceration, and after release. The National Academies of Sciences, Engineering, and Medicine's Roundtable on the Promotion of Health Equity convened a workshop to discuss the impact that juvenile justice system involvement has on the health and well-being of adolescents, families, and communities of color; examine policies that are successful in improving outcomes; and explore what needs to be done to improve all aspects of encounters with the juvenile justice system. The workshop suggested pursuing alternatives to traditional juvenile justice systems that would allow adolescents to stay in their communities rather than in detention, responding to behavioral problems in youth with interventions that promote health and positive development rather than punishment, and tailoring interventions and programming to participants' cultural background and gender identity. This report summarizes the proceedings of the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Ashby, Elizabeth %E Biffl, Claire %E Snair, Megan %T Toward a Post-Pandemic World: Lessons from COVID-19 for Now and the Future: Proceedings of a Workshop %@ 978-0-309-68840-6 %D 2022 %U https://nap.nationalacademies.org/catalog/26556/toward-a-post-pandemic-world-lessons-from-covid-19-for %> https://nap.nationalacademies.org/catalog/26556/toward-a-post-pandemic-world-lessons-from-covid-19-for %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 128 %X To take stock of lessons learned from COVID-19 around the world and in the United States, the Forum on Microbial Threats held two virtual workshops during 2021. The first workshop focused on what it means to frame the response to COVID-19 through a "syndemic" approach, and what the implications would be for global recovery. The second workshop focused more broadly on key lessons and emerging data from ongoing pandemic response efforts that can be incorporated into current health systems to improve resilience and preparedness for future outbreaks. This workshop explored the long-term effects of COVID-19 on health equity, including considerations for mental health and social determinants of health. It also addressed uncertainties during a pandemic, such as trust, communication, and engagement and explored approaches to systematize recovery efforts to improve the ongoing responses and prepare for the next pandemic. Experts discussed possibilities for a post-pandemic world and a response strategy for stakeholders that ensures sustained community partnerships and prioritization of health equity. This Proceedings of a Workshop summarizes the presentations and discussions from the second workshop. %0 Book %A National Academy of Medicine %E Greene, Sarah M. %E Ahmed, Mahnoor %E Chua, Peak Sen %E Grossmann, Claudia %T Sharing Health Data: The Why, the Will, and the Way Forward %@ 978-0-309-70497-7 %D 2022 %U https://nap.nationalacademies.org/catalog/27107/sharing-health-data-the-why-the-will-and-the-way %> https://nap.nationalacademies.org/catalog/27107/sharing-health-data-the-why-the-will-and-the-way %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %K Computers and Information Technology %P 136 %X Sharing health data and information across stakeholder groups is the bedrock of a learning health system. As data and information are increasingly combined across various sources, their generative value to transform health, health care, and health equity increases significantly. Health data have proven their centrality in guiding action to change the course of individual and population health, if properly stewarded and used. In the context of the COVID-19 pandemic, both data and a lack of data illuminated profound shortcomings that affected health care and health equity. Yet, a silver lining of the pandemic was a surge in collaboration among data holders in public health, health care, and technology firms, suggesting that an evolution in health data sharing is visible and tangible. This Special Publication features some of these novel data-sharing collaborations, and has been developed to provide practical context and implementation guidance that is critical to advancing the lessons learned identified in its parent NAM Special Publication, Health Data Sharing: Building a Foundation of Stakeholder Trust. The focus of this publication is to identify and describe exemplar groups to dispel the myth that sharing health data more broadly is impossible and illuminate the innovative approaches that are being taken to make progress in the current environment. It also serves as a resource for those waiting in the wings, showing how barriers were addressed and harvesting lessons and insights from those on the front lines. In the meantime, knowledge is already available to foster better health care and health outcomes. The examples described in this volume suggest how intentional attention to health data sharing can enable unparalleled advances, securing a healthier and more equitable future for all. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Bell, Crystal %E Carrera, Lyle %E Applegate, Austen %E Alper, Joe %T Accelerating the Use of Findings from Patient-Centered Outcomes Research in Clinical Practice to Improve Health and Health Care: Proceedings of a Workshop Series %@ 978-0-309-69513-8 %D 2022 %U https://nap.nationalacademies.org/catalog/26753/accelerating-the-use-of-findings-from-patient-centered-outcomes-research-in-clinical-practice-to-improve-health-and-health-care %> https://nap.nationalacademies.org/catalog/26753/accelerating-the-use-of-findings-from-patient-centered-outcomes-research-in-clinical-practice-to-improve-health-and-health-care %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 174 %X Patient-centered outcomes research (PCOR) studies consider the questions and outcomes that are meaningful to patients to compare the effectiveness of different prevention, diagnostic, and treatment options. PCOR also increases patient involvement in their care by providing them an opportunity to evaluate the quality, outcomes, and effectiveness of health care treatments and intervention, especially in areas where there is poor existing clinical evidence. The National Academies of Sciences, Engineering, and Medicine Board on Healthcare Services hosted a series of public workshops to explore ways of accelerating the use of PCOR findings in clinical practice to improve health and health care. Workshop discussions touched on the role of community health workers in helping care providers see and understand the whole picture of patient lives, the need for community engagement to ensure research is conducted and applied to practice equitably, and ways of measuring the impact of efforts to disseminate and implement new practices based on PCOR. This report summarizes the discussions that took place at these workshops. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Forstag, Erin Hammers %T Supporting Children with Disabilities: Lessons from the Pandemic: Proceedings of a Workshop %@ 978-0-309-69323-3 %D 2022 %U https://nap.nationalacademies.org/catalog/26702/supporting-children-with-disabilities-lessons-from-the-pandemic-proceedings-of %> https://nap.nationalacademies.org/catalog/26702/supporting-children-with-disabilities-lessons-from-the-pandemic-proceedings-of %I The National Academies Press %C Washington, DC %G English %K Behavioral and Social Sciences %K Health and Medicine %P 118 %X An estimated 10 percent of children in the United States are living with disabilities, including a disproportionate number of children living in poverty and children of marginalized racial and ethnic groups. During the pandemic, children with disabilities suffered disproportionately compared to their peers without disabilities. To learn more about what policies and practices might be sustained or implemented beyond the pandemic to support children with disabilities and their families, the Board on Children, Youth, and Families hosted a workshop on June 13-15, 2022. Workshop presenters included service providers, researchers, government leaders, youth with disabilities, and caregivers of children and youth with disabilities. In this workshop, practices were identified that could improve the system of care for children with disabilities as well as improve access to services for underserved and marginalized populations.