@BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Tamara Haag and Chanel Matney and Katherine Bowman", title = "Improving Systems of Follow-Up Care for Traumatic Brain Injury: Proceedings of a Workshop", isbn = "978-0-309-70826-5", abstract = "The National Academies Forum on Traumatic Brain Injury (TBI) hosted a hybrid public workshop in May 2023 to explore what is needed to better serve adult TBI patients who require follow-up care in support of their recovery at home. Speakers discussed when and how to follow up with less-severe TBI patients who have been discharged to their homes after a brief period of acute care, and the varied needs, issues, and considerations that relate to outpatient care and at-home symptom management during the approximately 6-month period following injury.This publication summarizes the presentation and discussion of the workshop.", url = "https://nap.nationalacademies.org/catalog/27205/improving-systems-of-follow-up-care-for-traumatic-brain-injury", year = 2023, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Janet E. Joy and Richard B. Johnston, Jr.", title = "Multiple Sclerosis: Current Status and Strategies for the Future", isbn = "978-0-309-07285-4", abstract = "Multiple sclerosis is a chronic and often disabling disease of the nervous system, affecting about 1 million people worldwide. Even though it has been known for over a hundred years, no cause or cure has yet been discovered\u2014but now there is hope. New therapies have been shown to slow the disease progress in some patients, and the pace of discoveries about the cellular machinery of the brain and spinal cord has accelerated.\nThis book presents a comprehensive overview of multiple sclerosis today, as researchers seek to understand its processes, develop therapies that will slow or halt the disease and perhaps repair damage, offer relief for specific symptoms, and improve the abilities of MS patients to function in their daily lives.\nThe panel reviews existing knowledge and identifies key research questions, focusing on:\n\n Research strategies that have the greatest potential to understand the biological mechanisms of recovery and to translate findings into specific strategies for therapy.\n How people adapt to MS and the research needed to improve the lives of people with MS.\n Management of disease symptoms (cognitive impairment, depression, \t\t\tspasticity, vision problems, and others).\n\nThe committee also discusses ways to build and financially support the MS research enterprise, including a look at challenges inherent in designing clinical trials. This book will be important to MS researchers, research funders, health care advocates for MS research and treatment, and interested patients and their families.", url = "https://nap.nationalacademies.org/catalog/10031/multiple-sclerosis-current-status-and-strategies-for-the-future", year = 2001, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine and National Research Council", editor = "Robert Graham and Frederick P. Rivara and Morgan A. Ford and Carol Mason Spicer", title = "Sports-Related Concussions in Youth: Improving the Science, Changing the Culture", isbn = "978-0-309-28800-2", abstract = "In the past decade, few subjects at the intersection of medicine and sports have generated as much public interest as sports-related concussions - especially among youth. Despite growing awareness of sports-related concussions and campaigns to educate athletes, coaches, physicians, and parents of young athletes about concussion recognition and management, confusion and controversy persist in many areas. Currently, diagnosis is based primarily on the symptoms reported by the individual rather than on objective diagnostic markers, and there is little empirical evidence for the optimal degree and duration of physical rest needed to promote recovery or the best timing and approach for returning to full physical activity.\nSports-Related Concussions in Youth: Improving the Science, Changing the Culture reviews the science of sports-related concussions in youth from elementary school through young adulthood, as well as in military personnel and their dependents. This report recommends actions that can be taken by a range of audiences - including research funding agencies, legislatures, state and school superintendents and athletic directors, military organizations, and equipment manufacturers, as well as youth who participate in sports and their parents - to improve what is known about concussions and to reduce their occurrence. Sports-Related Concussions in Youth finds that while some studies provide useful information, much remains unknown about the extent of concussions in youth; how to diagnose, manage, and prevent concussions; and the short- and long-term consequences of concussions as well as repetitive head impacts that do not result in concussion symptoms.\nThe culture of sports negatively influences athletes' self-reporting of concussion symptoms and their adherence to return-to-play guidance. Athletes, their teammates, and, in some cases, coaches and parents may not fully appreciate the health threats posed by concussions. Similarly, military recruits are immersed in a culture that includes devotion to duty and service before self, and the critical nature of concussions may often go unheeded. According to Sports-Related Concussions in Youth, if the youth sports community can adopt the belief that concussions are serious injuries and emphasize care for players with concussions until they are fully recovered, then the culture in which these athletes perform and compete will become much safer. Improving understanding of the extent, causes, effects, and prevention of sports-related concussions is vitally important for the health and well-being of youth athletes. The findings and recommendations in this report set a direction for research to reach this goal.", url = "https://nap.nationalacademies.org/catalog/18377/sports-related-concussions-in-youth-improving-the-science-changing-the", year = 2014, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Marilyn J. Field and Christine K. Cassel", title = "Approaching Death: Improving Care at the End of Life", isbn = "978-0-309-09002-5", abstract = "When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an \"overtreated\" dying is feared, untreated pain or emotional abandonment are equally frightening.\nApproaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care.\nThis volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life:\n\n Determining diagnosis and prognosis and communicating these to patient and family.\n Establishing clinical and personal goals.\n Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances.\n\nApproaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom \"nothing can be done.\"", url = "https://nap.nationalacademies.org/catalog/5801/approaching-death-improving-care-at-the-end-of-life", year = 1997, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine and National Research Council", editor = "Kathleen M. Foley and Hellen Gelband", title = "Improving Palliative Care for Cancer", isbn = "978-0-309-07402-5", abstract = "In our society\u2019s aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute\u2019s budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriers\u2014scientific, policy, and social\u2014that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it. ", url = "https://nap.nationalacademies.org/catalog/10149/improving-palliative-care-for-cancer", year = 2001, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Laura Aiuppa and Maria Hewitt and Sharyl J. Nass", title = "Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop", isbn = "978-0-309-47298-2", abstract = "The 2006 Institute of Medicine (IOM) consensus study report From Cancer Patient to Cancer Survivor: Lost in Transition made recommendations to improve the quality of care that cancer survivors receive, in recognition that cancer survivors are at risk for significant physical, psychosocial, and financial repercussions from cancer and its treatment. Since then, efforts to recognize and address the unique needs of cancer survivors have increased, including an emphasis on improving the evidence base for cancer survivorship care and identifying best practices in the delivery of high-quality cancer survivorship care. \n\nTo examine progress in cancer survivorship care since the Lost in Transition report, the National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a workshop in July 2017, in Washington, DC. Workshop participants highlighted potential opportunities to improve the planning, management, and delivery of cancer survivorship care. This publication summarizes the presentations and discussions from the workshop.", url = "https://nap.nationalacademies.org/catalog/25043/long-term-survivorship-care-after-cancer-treatment-proceedings-of-a", year = 2018, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine and National Research Council", editor = "Kathleen M. Foley and Hellen Gelband", title = "Improving Palliative Care for Cancer: Summary and Recommendations", isbn = "978-0-309-07563-3", abstract = "It is innately human to comfort and provide care to those suffering from cancer, particularly those close to death. Yet what seems self-evident at an individual, personal level has, by and large, not guided policy at the level of institutions in this country. There is no argument that palliative care should be integrated into cancer care from diagnosis to death. But significant barriers-attitudinal, behavioral, economic, educational, and legal-still limit access to care for a large proportion of those dying from cancer, and in spite of tremendous scientific opportunities for medical progress against all the major symptoms associated with cancer and cancer death, public research institutions have not responded. In accepting a single-minded focus on research toward cure, we have inadvertently devalued the critical need to care for and support patients with advanced disease, and their families.This report builds on and takes forward an agenda set out by the 1997 IOM report Approaching Death: Improving Care at the End of Life, which came at a time when leaders in palliative care and related fields had already begun to air issues surrounding care of the dying. That report identified significant gaps in knowledge about care at the end of life and the need for serious attention from biomedical, social science, and health services researchers. Most importantly, it recognized that the impediments to good care could be identified and potentially remedied. The report itself catalyzed further public involvement in specific initiatives-mostly pilot and demonstration projects and programs funded by the nonprofit foundation community, which are now coming to fruition.", url = "https://nap.nationalacademies.org/catalog/10147/improving-palliative-care-for-cancer-summary-and-recommendations", year = 2001, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", title = "Working Together: We Can Help People Get Good Care When They Are Dying", abstract = "Many people fear dying, many accept it as a simple fact of life, and many are unsure how to feel about death. Like our births, our deaths are unique to us but we should all feel loved and cared for when facing the end of life. It's clear that many dying people do not get good care simply due to the mindset of \"they're dying, why bother?\". It's important that we create a health care system that assures the dying not too little and not too much care. Working Together: We Can Help People Get Good Care When They Are Dying outlines the necessity of this health care system, how we should approach the development of said system, the current forms of care for dying people, as well as the issues with our current system. The book also features suggestions to ameliorate the situation.", url = "https://nap.nationalacademies.org/catalog/9798/working-together-we-can-help-people-get-good-care-when", year = 2000, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Marilyn J. Field and Richard E. Behrman", title = "When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families", isbn = "978-0-309-08437-6", abstract = "The death of a child is a special sorrow. No matter the circumstances, a child\u2019s death is a life-altering experience. Except for the child who dies suddenly and without forewarning, physicians, nurses, and other medical personnel usually play a central role in the lives of children who die and their families. At best, these professionals will exemplify \u201cmedicine with a heart.\u201d At worst, families\u2019 encounters with the health care system will leave them with enduring painful memories, anger, and regrets. \nWhen Children Die examines what we know about the needs of these children and their families, the extent to which such needs are\u2014and are not\u2014being met, and what can be done to provide more competent, compassionate, and consistent care. The book offers recommendations for involving child patients in treatment decisions, communicating with parents, strengthening the organization and delivery of services, developing support programs for bereaved families, improving public and private insurance, training health professionals, and more. It argues that taking these steps will improve the care of children who survive as well as those who do not\u2014and will likewise help all families who suffer with their seriously ill or injured child.\nFeaturing illustrative case histories, the book discusses patterns of childhood death and explores the basic elements of physical, emotional, spiritual, and practical care for children and families experiencing a child\u2019s life-threatening illness or injury. \n", url = "https://nap.nationalacademies.org/catalog/10390/when-children-die-improving-palliative-and-end-of-life-care", year = 2003, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Erin Balogh and Emily Zevon and Margie Patlak and Sharyl J. Nass", title = "Developing and Sustaining an Effective and Resilient Oncology Careforce: Proceedings of a Workshop", isbn = "978-0-309-49604-9", abstract = "The oncology careforce faces challenges as population growth in the U.S. contributes to increases in the number of patients diagnosed with cancer. Significant advances in cancer research, screening and diagnostic practices, and treatment have led to the age-adjusted declining mortality rate from cancer. However, as the field continues to develop and advance, cancer care has become more complex than ever before. There is a growing concern regarding the U.S. health care system's capacity to deliver high-quality cancer care to the increasing number of patients. \n\nThe National Academies convened a workshop on February 11-12, 2019 to explore trends in cancer care and identify opportunities for improvement in the rapidly developing oncology careforce. Discussions at the workshop primarily focused on trends in demographics, the careforce, and oncology practice, as well as implications for the future of cancer care and strategies to improve the organization and delivery of cancer care. Opportunities to change policy and leverage technologies in oncology were also identified. This publication summarizes the presentations and discussions from the workshop.", url = "https://nap.nationalacademies.org/catalog/25533/developing-and-sustaining-an-effective-and-resilient-oncology-careforce-proceedings", year = 2019, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Miriam Davis and Janet E. Joy", title = "Summary of a Workshop on Research in Multiple Sclerosis, April 5-6, 2001", isbn = "978-0-309-07569-5", abstract = "Multiple Sclerosis: Current Status and Strategies for the Future identifies promising areas of multiple sclerosis (MS) research based on a strategic analysis of the current state of knowledge. The report was written by the Institute of Medicine (IOM) Committee on MS Research Strategies, and on April 2001, the Committee held a workshop to advance research recommended by the report. The specific goals of the workshop were to disseminate information about the report, foster collaboration, and serve as a launch pad for implementation of the report's recommendations.\n\nSummary of a Workshop on Research in Multiple Sclerosis, April5-6,2001 presents the reports from each breakout group and summarizes the plenary session discussion. This workshop summary contains particular viewpoints attributed to individual participants or to groups of participants (including breakout groups), but does not contain statements about what \"the workshop\" or \"all its participants\" concluded. \n ", url = "https://nap.nationalacademies.org/catalog/10116/summary-of-a-workshop-on-research-in-multiple-sclerosis-april-5-6-2001", year = 2001, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", title = "Cancer in Elderly People: Workshop Proceedings", isbn = "978-0-309-10476-0", abstract = "A high proportion of cancer occurs primarily in older persons, and incidence of the major cancers is greater. This, combined with the expansion of an aging America, is bound to have far reaching effects on the nation's healthcare industry.\n\nThis summary of a workshop held in October 2006, reviews the various important implications of changing demographics and the cancer disease burden in the United States.\n ", url = "https://nap.nationalacademies.org/catalog/11869/cancer-in-elderly-people-workshop-proceedings", year = 2007, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Marilyn J. Field and Richard E. Behrman", title = "When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families: Summary", abstract = "This document is a brief summary of the Institute of Medicine report entitled When Children Die: Improving Palliative and End-of-Life Care for Children. Better care is possible now, but current methods of organizing and financing palliative, end-of-life, and bereavement care complicate the provision and coordination of services to help children and families and sometimes require families to choose between curative or life-prolonging care and palliative services, in particular, hospice care. Inadequate data and scientific knowledge impede efforts to deliver effective care, educate professionals to provide such care, and design supportive public policies. Integrating effective palliative care from the time a child's life-threatening medical problem is diagnosed will improve care for children who survive as well as children who die-and will help the families of all these children. The report recognizes that while much can be done now to support children and families, much more needs to be learned. The analysis and recommendations reflect current knowledge and judgments, but new research and insights will undoubtedly suggest modifications and shifts in emphasis in future years.", url = "https://nap.nationalacademies.org/catalog/10845/when-children-die-improving-palliative-and-end-of-life-care", year = 2003, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Margie Patlak and Cyndi Trang and Sharyl J. Nass", title = "Establishing Effective Patient Navigation Programs in Oncology: Proceedings of a Workshop", isbn = "978-0-309-47454-2", abstract = "Delivering high-quality cancer care to all patients presents numerous challenges, including difficulties with care coordination and access. Patient navigation is a community-based service delivery intervention designed to promote access to timely diagnosis and treatment of cancer and other chronic diseases by eliminating barriers to care, and has often been proposed and implemented to address these challenges. However, unresolved questions include where patient navigation programs should be deployed, and which patients should be prioritized to receive navigation services when resources are limited. \n\nTo address these issues and facilitate discussion on how to improve navigation services for patients with cancer, the National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a workshop on November 13 and 14, 2017. At this workshop, a broad range of experts and stakeholders, including clinicians, navigators, researchers, and patients, explored which patients need navigation and who should serve as navigators, and the benefits of navigation and current gaps in the evidence base.", url = "https://nap.nationalacademies.org/catalog/25073/establishing-effective-patient-navigation-programs-in-oncology-proceedings-of-a", year = 2018, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Laurene Graig and Joe Alper", title = "Models and Strategies to Integrate Palliative Care Principles into Care for People with Serious Illness: Proceedings of a Workshop", isbn = "978-0-309-46611-0", abstract = "Palliative care is the interdisciplinary specialty focused on improving quality of life for people with serious illness and their families. This interdisciplinary care is provided by doctors, nurses, social workers, chaplains and others who work together with the patient's other doctors to provide an extra layer of support. Such care is appropriate for people at any age and at any stage in a serious illness, and can be provided together with curative treatment to address clinical, emotional, psychosocial and spiritual concerns of the patient and their family. To better understand how the principles of palliative care can be integrated into the overall provision of care and services to those facing serious illness, the Roundtable on Quality Care for People with Serious Illness held a public workshop in April 2017. This publication summarizes the presentations and discussions from the workshop.", url = "https://nap.nationalacademies.org/catalog/24908/models-and-strategies-to-integrate-palliative-care-principles-into-care-for-people-with-serious-illness", year = 2018, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Joe Alper", title = "Health Literacy and Palliative Care: Workshop Summary", isbn = "978-0-309-38036-2", abstract = "The Institute of Medicine Roundtable on Health Literacy convened a 1-day public workshop to explore the relationship between palliative care and health literacy, and the importance of health literate communication in providing high-quality delivery of palliative care. Health Literacy and Palliative Care summarizes the discussions that occurred throughout the workshop and highlights the key lessons presented, practical strategies, and the needs and opportunities for improving health literacy in the United States.", url = "https://nap.nationalacademies.org/catalog/21839/health-literacy-and-palliative-care-workshop-summary", year = 2016, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Laurene Graig and Kaitlyn Friedman and Joe Alper", title = "The Challenges and Opportunities of Advance Care Planning: Proceedings of a Workshop", isbn = "978-0-309-44737-9", abstract = "Advance Care Planning(ACP)has long been a staple of caring for people with serious illness. Over its history, it has been defined in different ways. Clinicians, researchers, patients, and the public have developed a variety of perspectives about the many aspects of ACP, ranging from the definition to the timing, goals, outcomes, and value of ACP.\nTo better understand the challenges and opportunities for ACP, acknowledge and highlight divergent viewpoints, and examine what is empirically known and not known about ACP and its outcomes, the National Academies of Sciences, Engineering, and Medicine's Roundtable on Quality Care for People with Serious Illness hosted a virtual public workshop, Advance Care Planning: Challenges and Opportunities, on October 26 and November 2, 2020. The workshop explored the paradox of ACP, its evidence base, ways to think differently about ACP, and various approaches to making it more effective.This Proceedings of a Workshop summarizes the presentations and discussions from that workshop.", url = "https://nap.nationalacademies.org/catalog/26119/the-challenges-and-opportunities-of-advance-care-planning-proceedings-of", year = 2021, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Emily Zevon and Erin Balogh and Joe Alper and Sharyl Nass", title = "Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop", isbn = "978-0-309-67105-7", abstract = "Health literacy is a critical skill for engaging in healthy behaviors to reduce disease risk and improve health outcomes across the continuum of cancer care. However, estimates suggest that more than one-third of the U.S. adult population has low health literacy, and nearly half of all patients with cancer have difficulty understanding information about their disease or treatment. Low health literacy among patients with cancer is associated with poor health and treatment outcomes, including lower adherence to treatment, higher rates of missed appointments, and an increased risk of hospitalization. Low health literacy can also impede informed decision making, especially as cancer care becomes increasingly complex and as patients and their families take more active roles in treatment decisions.\nTo examine opportunities to improve communication across the cancer care continuum, the National Cancer Policy Forum collaborated with the Roundtable on Health Literacy to host a workshop, Health Literacy and Communication Strategies in Oncology, July 15-16, 2019, in Washington, DC. Patients, patient advocates, clinicians, and researchers, representatives of health care organizations, academic medical centers, insurers, and federal agencies explored the challenges of achieving effective communication in cancer care. This publication summarizes the presentations and discussions of the workshop.", url = "https://nap.nationalacademies.org/catalog/25664/health-literacy-and-communication-strategies-in-oncology-proceedings-of-a", year = 2020, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", title = "Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life", isbn = "978-0-309-30310-1", abstract = "For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. \nDeath is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. \nDying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.\n", url = "https://nap.nationalacademies.org/catalog/18748/dying-in-america-improving-quality-and-honoring-individual-preferences-near", year = 2015, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Margie Patlak and Erin Balogh and Sharyl J. Nass", title = "Patient-Centered Cancer Treatment Planning: Improving the Quality of Oncology Care: Workshop Summary", isbn = "978-0-309-21273-1", abstract = "Each year approximately 1.5 million people are diagnosed with cancer in the United States, most of whom inevitably face difficult decisions concerning their course of care. Recognizing challenges associated with cancer treatment, the National Coalition for Cancer Survivorship (NCCS) and the National Cancer Policy Forum (NCPF) of the Institute of Medicine (IOM) hosted a public workshop in Washington, DC on February 28 and March 1, 2011, entitled Patient-Centered Cancer Treatment Planning: Improving the Quality of Oncology Care.\nThis workshop summary includes an overview of patient-centered care and cancer treatment planning, as well as subject areas on shared decision making, communication in the cancer care setting, and patient experiences with cancer treatment. Best practices, models of treatment planning, and tools to facilitate their use are also discussed, along with policy changes that may promote patient-centeredness by enhancing patient's understanding of and commitment to the goals of treatment through shared decision-making process with their healthcare team from the moment of diagnosis onward. Moreover, Patient-Centered Cancer Treatment Planning emphasizes treatment planning for patients with cancer at the time diagnosis.", url = "https://nap.nationalacademies.org/catalog/13155/patient-centered-cancer-treatment-planning-improving-the-quality-of-oncology", year = 2011, publisher = "The National Academies Press", address = "Washington, DC" }