%0 Book %A National Academies of Sciences, Engineering, and Medicine %E Byars-Winston, Angela %E Dahlberg, Maria Lund %T The Science of Effective Mentorship in STEMM %@ 978-0-309-49729-9 %D 2019 %U https://nap.nationalacademies.org/catalog/25568/the-science-of-effective-mentorship-in-stemm %> https://nap.nationalacademies.org/catalog/25568/the-science-of-effective-mentorship-in-stemm %I The National Academies Press %C Washington, DC %G English %K Education %P 306 %X Mentorship is a catalyst capable of unleashing one's potential for discovery, curiosity, and participation in STEMM and subsequently improving the training environment in which that STEMM potential is fostered. Mentoring relationships provide developmental spaces in which students' STEMM skills are honed and pathways into STEMM fields can be discovered. Because mentorship can be so influential in shaping the future STEMM workforce, its occurrence should not be left to chance or idiosyncratic implementation. There is a gap between what we know about effective mentoring and how it is practiced in higher education. The Science of Effective Mentorship in STEMM studies mentoring programs and practices at the undergraduate and graduate levels. It explores the importance of mentorship, the science of mentoring relationships, mentorship of underrepresented students in STEMM, mentorship structures and behaviors, and institutional cultures that support mentorship. This report and its complementary interactive guide present insights on effective programs and practices that can be adopted and adapted by institutions, departments, and individual faculty members. %0 Book %A Institute of Medicine %A National Academies of Sciences, Engineering, and Medicine %E Nass, Sharyl J. %E Patlak, Margie %T Comprehensive Cancer Care for Children and Their Families: Summary of a Joint Workshop by the Institute of Medicine and the American Cancer Society %@ 978-0-309-37441-5 %D 2015 %U https://nap.nationalacademies.org/catalog/21754/comprehensive-cancer-care-for-children-and-their-families-summary-of %> https://nap.nationalacademies.org/catalog/21754/comprehensive-cancer-care-for-children-and-their-families-summary-of %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 126 %X Childhood cancer is an area of oncology that has seen both remarkable progress as well as substantial continuing challenges. While survival rates for some pediatric cancers present a story of success, for many types of pediatric cancers, little progress has been made. Many cancer treatments are known to cause not only significant acute side effects, but also lead to numerous long-term health risks and reduced quality of life. Even in cases where the cancer is considered curable, the consequences of treatment present substantial long-term health and psychosocial concerns for children, their families, their communities, and our health system. To examine specific opportunities and suggestions for driving optimal care delivery supporting survival with high quality of life, the National Cancer Policy Forum of the Institute of Medicine and the American Cancer Society co-hosted a workshop which convened experts and members of the public on March 9 and 10, 2015. At this workshop, clinicians and researchers in pediatric oncology, palliative, and psychosocial care, along with representatives from the U.S. Food and Drug Administration, National Cancer Institute, Children's Oncology Group, pharmaceutical companies, and patient advocacy organizations, discussed and developed a menu of options for action to improve research, quality of care, and outcomes for pediatric cancer patients and their families. In addition, parents of children with cancer and pediatric cancer survivors shared their experiences with care and provided poignant personal perspectives on specific quality of life concerns and support needs for children and families across the life spectrum. This report summarizes the presentations and discussion of the workshop. %0 Book %A Institute of Medicine %E Levit, Laura A. %E Balogh, Erin P. %E Nass, Sharyl J. %E Ganz, Patricia A. %T Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis %@ 978-0-309-28660-2 %D 2013 %U https://nap.nationalacademies.org/catalog/18359/delivering-high-quality-cancer-care-charting-a-new-course-for %> https://nap.nationalacademies.org/catalog/18359/delivering-high-quality-cancer-care-charting-a-new-course-for %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 412 %X In the United States, approximately 14 million people have had cancer and more than 1.6 million new cases are diagnosed each year. However, more than a decade after the Institute of Medicine (IOM) first studied the quality of cancer care, the barriers to achieving excellent care for all cancer patients remain daunting. Care often is not patient-centered, many patients do not receive palliative care to manage their symptoms and side effects from treatment, and decisions about care often are not based on the latest scientific evidence. The cost of cancer care also is rising faster than many sectors of medicine—having increased to $125 billion in 2010 from $72 billion in 2004—and is projected to reach $173 billion by 2020. Rising costs are making cancer care less affordable for patients and their families and are creating disparities in patients' access to high-quality cancer care. There also are growing shortages of health professionals skilled in providing cancer care, and the number of adults age 65 and older—the group most susceptible to cancer—is expected to double by 2030, contributing to a 45 percent increase in the number of people developing cancer. The current care delivery system is poorly prepared to address the care needs of this population, which are complex due to altered physiology, functional and cognitive impairment, multiple coexisting diseases, increased side effects from treatment, and greater need for social support. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis presents a conceptual framework for improving the quality of cancer care. This study proposes improvements to six interconnected components of care: (1) engaged patients; (2) an adequately staffed, trained, and coordinated workforce; (3) evidence-based care; (4) learning health care information technology (IT); (5) translation of evidence into clinical practice, quality measurement and performance improvement; and (6) accessible and affordable care. This report recommends changes across the board in these areas to improve the quality of care. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis provides information for cancer care teams, patients and their families, researchers, quality metrics developers, and payers, as well as HHS, other federal agencies, and industry to reevaluate their current roles and responsibilities in cancer care and work together to develop a higher quality care delivery system. By working toward this shared goal, the cancer care community can improve the quality of life and outcomes for people facing a cancer diagnosis. %0 Book %A National Academies of Sciences, Engineering, and Medicine %T Effective Mentoring in STEMM: Practice, Research, and Future Directions: Proceedings of a Workshop–in Brief %D 2017 %U https://nap.nationalacademies.org/catalog/24815/effective-mentoring-in-stemm-practice-research-and-future-directions-proceedings %> https://nap.nationalacademies.org/catalog/24815/effective-mentoring-in-stemm-practice-research-and-future-directions-proceedings %I The National Academies Press %C Washington, DC %G English %K Education %K Policy for Science and Technology %P 8 %X Mentoring has long been understood as a beneficial component of academic and professional development. But investigations of the attributes of effective mentoring interactions in science, technology, engineering, mathematics, and medical (STEMM) education are only now starting to shed light on how exactly these complex and dynamic relationships form, evolve, and impact the lives and careers of the current and next generation of STEMM professionals. To explore the conversation surrounding this highly interdisciplinary field, the Board on Higher Education and Workforce and the Committee on Women in Science, Engineering, and Medicine, in collaboration with the Board on Science Education and the Teacher Advisory Council, convened a workshop in Washington D.C. on February 9-10, 2017. Educators, scientists, engineers, industry leaders, and scholars from a wide range of career stages focused on identifying successful practices and metrics for mentoring students in STEMM career pathways. Workshop sessions spanned topics across the mentoring field: definitions, theories, practices, perspectives, evidence, research, identity, and reflection, with a particular emphasis on identifying the evidence supporting successful mentoring practices for women and students of color across high school and postsecondary education. This publication briefly summarizes the presentations and discussions from the workshop. %0 Book %A Institute of Medicine %A Institute of Medicine %T The Richard and Hinda Rosenthal Lectures -- 2001: Exploring Complementary and Alternative Medicine %@ 978-0-309-08503-8 %D 2003 %U https://nap.nationalacademies.org/catalog/10547/the-richard-and-hinda-rosenthal-lectures-2001-exploring-complementary-and %> https://nap.nationalacademies.org/catalog/10547/the-richard-and-hinda-rosenthal-lectures-2001-exploring-complementary-and %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 52 %X The Rosenthal lecture included in this volume explores the world of complementary medicine and its implications for medical research, clinical practice, and policy in the United States. %0 Book %A Institute of Medicine %E Nass, Sharyl J. %E Patlak, Margie %T Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer: Workshop Summary %@ 978-0-309-29441-6 %D 2013 %U https://nap.nationalacademies.org/catalog/18547/identifying-and-addressing-the-needs-of-adolescents-and-young-adults-with-cancer %> https://nap.nationalacademies.org/catalog/18547/identifying-and-addressing-the-needs-of-adolescents-and-young-adults-with-cancer %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 96 %X Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer is the summary of a workshop convened by the Institute of Medicine's National Cancer Policy Forum in July 2013 to facilitate discussion about gaps and challenges in caring for adolescent and young adult cancer patients and potential strategies and actions to improve the quality of their care. The workshop featured invited presentations from clinicians and other advocates working to improve the care and outcomes for the adolescent and young adult population with cancer. Cancer is the leading disease-related cause of death in adolescents and young adults. Each year nearly 70,000 people between the ages of 15 and 39 are diagnosed with cancer, approximately 8 times more than children under age 15. This population faces a variety of unique short- and long-term health and psychosocial issues, such as difficulty reentering school, the workforce, or the dating scene; problems with infertility; cardiac, pulmonary, or other treatment repercussions; and secondary malignancies. Survivors are also at increased risk for psychiatric conditions such as anxiety, depression, substance abuse, and suicide and may have difficulty acquiring health insurance and paying for needed care. Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer discusses a variety of topics important to adolescent and young adult patients with cancer, including the ways in which cancers affecting this group differ from cancers in other age groups and what that implies about the best treatments for these cancer patients. This report identifies gaps and challenges in providing optimal care to adolescent and young adult patients with cancer and to discuss potential strategies and actions to address them. %0 Book %A Institute of Medicine %A National Academies of Sciences, Engineering, and Medicine %E Olson, Steve %T Using Existing Platforms to Integrate and Coordinate Investments for Children: Workshop in Brief %D 2015 %U https://nap.nationalacademies.org/catalog/21783/using-existing-platforms-to-integrate-and-coordinate-investments-for-children %> https://nap.nationalacademies.org/catalog/21783/using-existing-platforms-to-integrate-and-coordinate-investments-for-children %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 6 %X On March 14-15, 2015, the Forum on Investing in Young Children Globally, in partnership with the Centre for Health Education and Health Promotion and Wu Yee Sun College of the Chinese University of Hong Kong, held a workshop in Hong Kong to examine the science and policy issues involved in coordinating investments in children and their caregivers. Over the course of a day and a half, researchers, policy makers, program practitioners, and other experts on early childhood development from 22 countries discussed how best to coordinate such investments using existing platforms across areas of health, education, nutrition, social protection, and other service domains. This report briefly summarizes that event. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Brown, Taylor Kate %E Wynn, Melissa E. %T Mentorship, Well-Being, and Professional Development in STEMM: Addressing the "Knowing-Doing Gap": Proceedings of a Workshop—in Brief %D 2024 %U https://nap.nationalacademies.org/catalog/27513/mentorship-well-being-and-professional-development-in-stemm-addressing-the-knowing-doing-gap %> https://nap.nationalacademies.org/catalog/27513/mentorship-well-being-and-professional-development-in-stemm-addressing-the-knowing-doing-gap %I The National Academies Press %C Washington, DC %G English %K Education %P 13 %X Despite the significant contributions of graduate students and postdoctoral scholars to scientific research, the environments in which they work and learn often offer inconsistent mentorship and professional development opportunities and only intermittently address their mental, financial, and social well-being. To examine mentorship, well-being, and professional development and the challenge of translating existing mentorship theory into effective interventions, The Roundtable on Mentorship, Well-being, and Professional Development convened a workshop on November 1 and 2, 2023. This publication summarizes the presentation and discussion of the workshop. %0 Book %A Institute of Medicine %E Adler, Nancy E. %E Page, Ann E. K. %T Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs %@ 978-0-309-11107-2 %D 2008 %U https://nap.nationalacademies.org/catalog/11993/cancer-care-for-the-whole-patient-meeting-psychosocial-health-needs %> https://nap.nationalacademies.org/catalog/11993/cancer-care-for-the-whole-patient-meeting-psychosocial-health-needs %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 454 %X Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychological and social (psychosocial) problems associated with the illness. This failure can compromise the effectiveness of health care and thereby adversely affect the health of cancer patients. Psychological and social problems created or exacerbated by cancer—including depression and other emotional problems; lack of information or skills needed to manage the illness; lack of transportation or other resources; and disruptions in work, school, and family life—cause additional suffering, weaken adherence to prescribed treatments, and threaten patients' return to health. Today, it is not possible to deliver high-quality cancer care without using existing approaches, tools, and resources to address patients' psychosocial health needs. All patients with cancer and their families should expect and receive cancer care that ensures the provision of appropriate psychosocial health services. Cancer Care for the Whole Patient recommends actions that oncology providers, health policy makers, educators, health insurers, health planners, researchers and research sponsors, and consumer advocates should undertake to ensure that this standard is met. %0 Book %A Institute of Medicine %A National Academies of Sciences, Engineering, and Medicine %E Olson, Steve %T Using Existing Platforms to Integrate and Coordinate Investments for Children: Summary of a Joint Workshop by the National Academies of Sciences, Engineering, and Medicine; Centre for Health Education and Health Promotion; and Wu Yee Sun College of the Chinese University of Hong Kong %@ 978-0-309-37797-3 %D 2015 %U https://nap.nationalacademies.org/catalog/21799/using-existing-platforms-to-integrate-and-coordinate-investments-for-children %> https://nap.nationalacademies.org/catalog/21799/using-existing-platforms-to-integrate-and-coordinate-investments-for-children %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 126 %X The integration and coordination of health, education, nutrition, social protection, and other services have the potential to improve the lives of children and their caregivers around the world. However, integration and coordination of policies and programs affecting early childhood development can create both risks and benefits. In different localities, these services are more or less effective in achieving their objectives. They also are more or less coordinated in delivering services to the same recipients, and in some cases services are delivered by integrated multisectoral organizations. The result is a rich arena for policy analysis and change and a complex challenge for public- and private-sector organizations that are seeking to improve the lives of children. To examine the science and policy issues involved in coordinating investments in children and their caregivers, the Forum on Investing in Young Children Globally held a workshop in Hong Kong on March 14-15, 2015. Held in partnership with the Centre for Health Education and Health Promotion and Wu Yee Sun College of the Chinese University of Hong Kong, the workshop brought together researchers, policy makers, program practitioners, and other experts from 22 countries. This report highlights the presentations and discussions of the event. %0 Book %A Institute of Medicine %T Healthy, Resilient, and Sustainable Communities After Disasters: Strategies, Opportunities, and Planning for Recovery %@ 978-0-309-31619-4 %D 2015 %U https://nap.nationalacademies.org/catalog/18996/healthy-resilient-and-sustainable-communities-after-disasters-strategies-opportunities-and %> https://nap.nationalacademies.org/catalog/18996/healthy-resilient-and-sustainable-communities-after-disasters-strategies-opportunities-and %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %K Conflict and Security Issues %P 504 %X In the devastation that follows a major disaster, there is a need for multiple sectors to unite and devote new resources to support the rebuilding of infrastructure, the provision of health and social services, the restoration of care delivery systems, and other critical recovery needs. In some cases, billions of dollars from public, private and charitable sources are invested to help communities recover. National rhetoric often characterizes these efforts as a "return to normal." But for many American communities, pre-disaster conditions are far from optimal. Large segments of the U.S. population suffer from preventable health problems, experience inequitable access to services, and rely on overburdened health systems. A return to pre-event conditions in such cases may be short-sighted given the high costs - both economic and social - of poor health. Instead, it is important to understand that the disaster recovery process offers a series of unique and valuable opportunities to improve on the status quo. Capitalizing on these opportunities can advance the long-term health, resilience, and sustainability of communities - thereby better preparing them for future challenges. Healthy, Resilient, and Sustainable Communities After Disasters identifies and recommends recovery practices and novel programs most likely to impact overall community public health and contribute to resiliency for future incidents. This book makes the case that disaster recovery should be guided by a healthy community vision, where health considerations are integrated into all aspects of recovery planning before and after a disaster, and funding streams are leveraged in a coordinated manner and applied to health improvement priorities in order to meet human recovery needs and create healthy built and natural environments. The conceptual framework presented in Healthy, Resilient, and Sustainable Communities After Disasters lays the groundwork to achieve this goal and provides operational guidance for multiple sectors involved in community planning and disaster recovery. Healthy, Resilient, and Sustainable Communities After Disasters calls for actions at multiple levels to facilitate recovery strategies that optimize community health. With a shared healthy community vision, strategic planning that prioritizes health, and coordinated implementation, disaster recovery can result in a communities that are healthier, more livable places for current and future generations to grow and thrive - communities that are better prepared for future adversities. %0 Book %A Institute of Medicine %E Sloan, Frank A. %E Gelband, Hellen %T Cancer Control Opportunities in Low- and Middle-Income Countries %@ 978-0-309-10384-8 %D 2007 %U https://nap.nationalacademies.org/catalog/11797/cancer-control-opportunities-in-low-and-middle-income-countries %> https://nap.nationalacademies.org/catalog/11797/cancer-control-opportunities-in-low-and-middle-income-countries %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 340 %X Cancer is low or absent on the health agendas of low- and middle-income countries (LMCs) despite the fact that more people die from cancer in these countries than from AIDS and malaria combined. International health organizations, bilateral aid agencies, and major foundations&#8212which are instrumental in setting health priorities&#8212also have largely ignored cancer in these countries. This book identifies feasible, affordable steps for LMCs and their international partners to begin to reduce the cancer burden for current and future generations. Stemming the growth of cigarette smoking tops the list to prevent cancer and all the other major chronic diseases. Other priorities include infant vaccination against the hepatitis B virus to prevent liver cancers and vaccination to prevent cervical cancer. Developing and increasing capacity for cancer screening and treatment of highly curable cancers (including most childhood malignancies) can be accomplished using &#34resource-level appropriateness&#34 as a guide. And there are ways to make inexpensive oral morphine available to ease the pain of the many who will still die from cancer. %0 Book %A National Research Council %E Loughry, Maryanne %E Eyber, Carola %T Psychosocial Concepts in Humanitarian Work with Children: A Review of the Concepts and Related Literature %@ 978-0-309-08933-3 %D 2003 %U https://nap.nationalacademies.org/catalog/10698/psychosocial-concepts-in-humanitarian-work-with-children-a-review-of %> https://nap.nationalacademies.org/catalog/10698/psychosocial-concepts-in-humanitarian-work-with-children-a-review-of %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 144 %X This report is concerned with reviewing psychosocial concepts in research related to humanitarian work, with particular emphasis on research related to children affected by prolonged violence and armed conflict. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Widmer, Jocelyn %T Investing in Young Children for Peaceful Societies: Proceedings of a Joint Workshop by the National Academies of Sciences, Engineering, and Medicine; UNICEF; and the King Abdullah Bin Abdulaziz International Centre for Interreligious and Intercultural Dialogue (KAICIID) %@ 978-0-309-44930-4 %D 2016 %U https://nap.nationalacademies.org/catalog/23637/investing-in-young-children-for-peaceful-societies-proceedings-of-a %> https://nap.nationalacademies.org/catalog/23637/investing-in-young-children-for-peaceful-societies-proceedings-of-a %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %K Behavioral and Social Sciences %P 100 %X With the worst human refugee crisis since World War II as the backdrop, from March 16 through March 18, 2016, the National Academies of Sciences, Engineering, and Medicine, in partnership with UNICEF and the King Abdullah Bin Abdulaziz International Center for Inter-religious and Intercultural Dialogue (KAICIID), held a workshop in Amman, Jordan, to explore topics related to investing in young children for peaceful societies. Over the course of the workshop, researchers, policy makers, program practitioners, funders, youth, and other experts came together to understand the effects of conflict and violence on children, women, and youth across areas of health, education, nutrition, social protection, and other domains. The goal of the workshop was to continue to fill in gaps in knowledge and explore opportunities for discourse through a process of highlighting the science and practice. This publication summarizes the presentations and discussions from the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Fox, Erin G. %T Supporting the Health and Well-Being of Transgender and Gender Diverse Youth: Proceedings of a Workshop—in Brief %D 2023 %U https://nap.nationalacademies.org/catalog/27237/supporting-the-health-and-well-being-of-transgender-and-gender-diverse-youth %> https://nap.nationalacademies.org/catalog/27237/supporting-the-health-and-well-being-of-transgender-and-gender-diverse-youth %I The National Academies Press %C Washington, DC %G English %K Behavioral and Social Sciences %P 13 %X To explore existing evidence-based guidance and best practices on supporting the well-being of transgender and gender diverse youth, the National Academies of Sciences, Engineering, and Medicine Forum for Childrens Well-Being held a workshop on April 25, 2023. The workshop included presentations from experts as well as perspectives from youth and parents. This Proceedings of a Workshop-in Brief provides a high-level summary of the topics addressed in the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Aiuppa, Laura %E Hewitt, Maria %E Nass, Sharyl J. %T Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop %@ 978-0-309-47298-2 %D 2018 %U https://nap.nationalacademies.org/catalog/25043/long-term-survivorship-care-after-cancer-treatment-proceedings-of-a %> https://nap.nationalacademies.org/catalog/25043/long-term-survivorship-care-after-cancer-treatment-proceedings-of-a %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 160 %X The 2006 Institute of Medicine (IOM) consensus study report From Cancer Patient to Cancer Survivor: Lost in Transition made recommendations to improve the quality of care that cancer survivors receive, in recognition that cancer survivors are at risk for significant physical, psychosocial, and financial repercussions from cancer and its treatment. Since then, efforts to recognize and address the unique needs of cancer survivors have increased, including an emphasis on improving the evidence base for cancer survivorship care and identifying best practices in the delivery of high-quality cancer survivorship care. To examine progress in cancer survivorship care since the Lost in Transition report, the National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a workshop in July 2017, in Washington, DC. Workshop participants highlighted potential opportunities to improve the planning, management, and delivery of cancer survivorship care. This publication summarizes the presentations and discussions from the workshop. %0 Book %A Institute of Medicine %E Hewitt, Maria %E Ganz, Patricia A. %T Implementing Cancer Survivorship Care Planning: Workshop Summary %@ 978-0-309-10318-3 %D 2007 %U https://nap.nationalacademies.org/catalog/11739/implementing-cancer-survivorship-care-planning-workshop-summary %> https://nap.nationalacademies.org/catalog/11739/implementing-cancer-survivorship-care-planning-workshop-summary %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 320 %X One of the key recommendations of the joint IOM and NRC book, From Cancer Patient to Cancer Survivor: Lost in Transition, is that patients completing their primary treatment for cancer be given a summary of their treatment and a comprehensive plan for follow-up. This book answers practical questions about how this "Survivorship Care Plan," including what exactly it should contain, who will be responsible for creating and discussing it, implementation strategies, and anticipated barriers and challenges. %0 Book %A Institute of Medicine %A National Research Council %E Hewitt, Maria %E Weiner, Susan L. %E Simone, Joseph V. %T Childhood Cancer Survivorship: Improving Care and Quality of Life %@ 978-0-309-08898-5 %D 2003 %U https://nap.nationalacademies.org/catalog/10767/childhood-cancer-survivorship-improving-care-and-quality-of-life %> https://nap.nationalacademies.org/catalog/10767/childhood-cancer-survivorship-improving-care-and-quality-of-life %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 224 %X Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors’ health and quality of life. The more than two-thirds of childhood cancer survivors who experience late effects -- that is, complications, disabilities, or adverse outcomes -- as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans. %0 Book %A Institute of Medicine %A National Research Council %E Hewitt, Maria %E Ganz, Patricia A. %T From Cancer Patient to Cancer Survivor: Lost in Transition: An American Society of Clinical Oncology and Institute of Medicine Symposium %@ 978-0-309-10123-3 %D 2006 %U https://nap.nationalacademies.org/catalog/11613/from-cancer-patient-to-cancer-survivor-lost-in-transition-an %> https://nap.nationalacademies.org/catalog/11613/from-cancer-patient-to-cancer-survivor-lost-in-transition-an %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 196 %X This report of the proceedings of a symposium held in conjunction with the release of the IOM report, From Cancer Patient to Cancer Survivor: Lost in Transition, represents an effort on the part of the American Society of Clinical Oncology (ASCO), the National Coalition for Cancer Survivorship (NCCS), and the Institute of Medicine (IOM) to further disseminate the findings and recommendations of the IOM report and to take the next step toward implementation of those recommendations. The symposium and this report serve as important vehicles to raise awareness, fill gaps that have existed in cancer patients' long-term care, and chart a course for quality care for cancer survivors and their families. More than 100 stakeholders in the cancer community, including survivors, advocates, healthcare providers, government officials, insurers and payers, and researchers participated in the symposium. This report culminates a series of work at the IOM focused on cancer survivorship. The idea to embark on a major study of cancer survivorship within the National Academies originated with the National Cancer Policy Board (NCPB). The NCPB was established in 1997 in the IOM and the National Research Council's Division of Earth and Life Studies at the request of the National Cancer Institute (NCI), the National Institutes of Health, and the President's Cancer Panel. The NCPB identified emerging policy issues in the nation's effort to combat cancer, and prepared reports that address those issues, including a series of reports on topics ranging from cancer prevention to end-of-life care. %0 Book %A Institute of Medicine %A National Research Council %E Foley, Kathleen M. %E Gelband, Hellen %T Improving Palliative Care for Cancer: Summary and Recommendations %@ 978-0-309-07563-3 %D 2001 %U https://nap.nationalacademies.org/catalog/10147/improving-palliative-care-for-cancer-summary-and-recommendations %> https://nap.nationalacademies.org/catalog/10147/improving-palliative-care-for-cancer-summary-and-recommendations %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 78 %X It is innately human to comfort and provide care to those suffering from cancer, particularly those close to death. Yet what seems self-evident at an individual, personal level has, by and large, not guided policy at the level of institutions in this country. There is no argument that palliative care should be integrated into cancer care from diagnosis to death. But significant barriers-attitudinal, behavioral, economic, educational, and legal-still limit access to care for a large proportion of those dying from cancer, and in spite of tremendous scientific opportunities for medical progress against all the major symptoms associated with cancer and cancer death, public research institutions have not responded. In accepting a single-minded focus on research toward cure, we have inadvertently devalued the critical need to care for and support patients with advanced disease, and their families.This report builds on and takes forward an agenda set out by the 1997 IOM report Approaching Death: Improving Care at the End of Life, which came at a time when leaders in palliative care and related fields had already begun to air issues surrounding care of the dying. That report identified significant gaps in knowledge about care at the end of life and the need for serious attention from biomedical, social science, and health services researchers. Most importantly, it recognized that the impediments to good care could be identified and potentially remedied. The report itself catalyzed further public involvement in specific initiatives-mostly pilot and demonstration projects and programs funded by the nonprofit foundation community, which are now coming to fruition.