%0 Book %A National Academies of Sciences, Engineering, and Medicine %E Patlak, Margie %E Trang, Cyndi %E Nass, Sharyl J. %T Establishing Effective Patient Navigation Programs in Oncology: Proceedings of a Workshop %@ 978-0-309-47454-2 %D 2018 %U https://nap.nationalacademies.org/catalog/25073/establishing-effective-patient-navigation-programs-in-oncology-proceedings-of-a %> https://nap.nationalacademies.org/catalog/25073/establishing-effective-patient-navigation-programs-in-oncology-proceedings-of-a %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 114 %X Delivering high-quality cancer care to all patients presents numerous challenges, including difficulties with care coordination and access. Patient navigation is a community-based service delivery intervention designed to promote access to timely diagnosis and treatment of cancer and other chronic diseases by eliminating barriers to care, and has often been proposed and implemented to address these challenges. However, unresolved questions include where patient navigation programs should be deployed, and which patients should be prioritized to receive navigation services when resources are limited. To address these issues and facilitate discussion on how to improve navigation services for patients with cancer, the National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a workshop on November 13 and 14, 2017. At this workshop, a broad range of experts and stakeholders, including clinicians, navigators, researchers, and patients, explored which patients need navigation and who should serve as navigators, and the benefits of navigation and current gaps in the evidence base. %0 Book %A Institute of Medicine %E Patlak, Margie %E Balogh, Erin %E Nass, Sharyl J. %T Patient-Centered Cancer Treatment Planning: Improving the Quality of Oncology Care: Workshop Summary %@ 978-0-309-21273-1 %D 2011 %U https://nap.nationalacademies.org/catalog/13155/patient-centered-cancer-treatment-planning-improving-the-quality-of-oncology %> https://nap.nationalacademies.org/catalog/13155/patient-centered-cancer-treatment-planning-improving-the-quality-of-oncology %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 78 %X Each year approximately 1.5 million people are diagnosed with cancer in the United States, most of whom inevitably face difficult decisions concerning their course of care. Recognizing challenges associated with cancer treatment, the National Coalition for Cancer Survivorship (NCCS) and the National Cancer Policy Forum (NCPF) of the Institute of Medicine (IOM) hosted a public workshop in Washington, DC on February 28 and March 1, 2011, entitled Patient-Centered Cancer Treatment Planning: Improving the Quality of Oncology Care. This workshop summary includes an overview of patient-centered care and cancer treatment planning, as well as subject areas on shared decision making, communication in the cancer care setting, and patient experiences with cancer treatment. Best practices, models of treatment planning, and tools to facilitate their use are also discussed, along with policy changes that may promote patient-centeredness by enhancing patient's understanding of and commitment to the goals of treatment through shared decision-making process with their healthcare team from the moment of diagnosis onward. Moreover, Patient-Centered Cancer Treatment Planning emphasizes treatment planning for patients with cancer at the time diagnosis. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Zevon, Emily %E Balogh, Erin %E Alper, Joe %E Nass, Sharyl %T Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop %@ 978-0-309-67105-7 %D 2020 %U https://nap.nationalacademies.org/catalog/25664/health-literacy-and-communication-strategies-in-oncology-proceedings-of-a %> https://nap.nationalacademies.org/catalog/25664/health-literacy-and-communication-strategies-in-oncology-proceedings-of-a %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 78 %X Health literacy is a critical skill for engaging in healthy behaviors to reduce disease risk and improve health outcomes across the continuum of cancer care. However, estimates suggest that more than one-third of the U.S. adult population has low health literacy, and nearly half of all patients with cancer have difficulty understanding information about their disease or treatment. Low health literacy among patients with cancer is associated with poor health and treatment outcomes, including lower adherence to treatment, higher rates of missed appointments, and an increased risk of hospitalization. Low health literacy can also impede informed decision making, especially as cancer care becomes increasingly complex and as patients and their families take more active roles in treatment decisions. To examine opportunities to improve communication across the cancer care continuum, the National Cancer Policy Forum collaborated with the Roundtable on Health Literacy to host a workshop, Health Literacy and Communication Strategies in Oncology, July 15-16, 2019, in Washington, DC. Patients, patient advocates, clinicians, and researchers, representatives of health care organizations, academic medical centers, insurers, and federal agencies explored the challenges of achieving effective communication in cancer care. This publication summarizes the presentations and discussions of the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Balogh, Erin %E Zevon, Emily %E Patlak, Margie %E Nass, Sharyl J. %T Developing and Sustaining an Effective and Resilient Oncology Careforce: Proceedings of a Workshop %@ 978-0-309-49604-9 %D 2019 %U https://nap.nationalacademies.org/catalog/25533/developing-and-sustaining-an-effective-and-resilient-oncology-careforce-proceedings %> https://nap.nationalacademies.org/catalog/25533/developing-and-sustaining-an-effective-and-resilient-oncology-careforce-proceedings %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 82 %X The oncology careforce faces challenges as population growth in the U.S. contributes to increases in the number of patients diagnosed with cancer. Significant advances in cancer research, screening and diagnostic practices, and treatment have led to the age-adjusted declining mortality rate from cancer. However, as the field continues to develop and advance, cancer care has become more complex than ever before. There is a growing concern regarding the U.S. health care system's capacity to deliver high-quality cancer care to the increasing number of patients. The National Academies convened a workshop on February 11-12, 2019 to explore trends in cancer care and identify opportunities for improvement in the rapidly developing oncology careforce. Discussions at the workshop primarily focused on trends in demographics, the careforce, and oncology practice, as well as implications for the future of cancer care and strategies to improve the organization and delivery of cancer care. Opportunities to change policy and leverage technologies in oncology were also identified. This publication summarizes the presentations and discussions from the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Amankwah, Francis %E Balogh, Erin %E Maitin-Shepard, Melissa %E Nass, Sharyl %T The Impact of the Affordable Care Act on Cancer Prevention and Cancer Care: Proceedings of a Workshop %@ 978-0-309-27381-7 %D 2022 %U https://nap.nationalacademies.org/catalog/26400/the-impact-of-the-affordable-care-act-on-cancer-prevention-and-cancer-care %> https://nap.nationalacademies.org/catalog/26400/the-impact-of-the-affordable-care-act-on-cancer-prevention-and-cancer-care %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 72 %X The National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine convened a virtual workshop in March 2021 to examine the existing evidence base on how the Patient Protection and Affordable Care Act (ACA) has altered the landscape of cancer prevention and care delivery in the United States. The workshop featured presentations and discussions reviewing the effects of the ACA on people at risk for or living with cancer and providing insight into remaining policy challenges that could inform future efforts to improve and support the delivery of high-quality cancer care across the care continuum. This publication provides a high-level summary of the discussions presented during the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Balogh, Erin %E Amankwah, Francis %E Wizemann, Theresa %E Nass, Sharyl %T Promoting Health Equity in Cancer Care: Proceedings of a Workshop %@ 978-0-309-69189-5 %D 2022 %U https://nap.nationalacademies.org/catalog/26661/promoting-health-equity-in-cancer-care-proceedings-of-a-workshop %> https://nap.nationalacademies.org/catalog/26661/promoting-health-equity-in-cancer-care-proceedings-of-a-workshop %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 88 %X Despite advances in the delivery of high-quality cancer care and improvements in patient outcomes in recent years, disparities in cancer incidence, care, and patient outcomes persist. To examine opportunities to improve health equity across the cancer care continuum, the National Cancer Policy Forum and the Roundtable on the Promotion of Health Equity hosted a public workshop, Promoting Health Equity in Cancer Care, on October 25 and October 26, 2021. This virtual workshop featured presentations and panel discussions on topics that included: opportunities to improve equitable access to affordable, high-quality cancer care; strategies to identify and address the intersectionality of structural racism and implicit bias in cancer care delivery; the potential for quality measurement and payment mechanisms to incentivize health equity in cancer care delivery; and clinical practice data collection efforts to better assess and care for people living with and beyond cancer. This publication summarizes the presentation and discussion of the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Flaubert, Jennifer Lalitha %E Cooper, Ruth %E Snair, Megan %E Nass, Sharyl %T Achieving Excellence in Cancer Diagnosis: Proceedings of a Workshop—in Brief %D 2022 %U https://nap.nationalacademies.org/catalog/26505/achieving-excellence-in-cancer-diagnosis-proceedings-of-a-workshop-in %> https://nap.nationalacademies.org/catalog/26505/achieving-excellence-in-cancer-diagnosis-proceedings-of-a-workshop-in %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 12 %X The Board on Health Care Services of the National Academies of Sciences, Engineering, and Medicine hosted a virtual workshop to examine the current science and research opportunities for improving the diagnosis of cancer within the U.S. health care system. The workshop, held on October 6, 2021, highlighted the patient experience, the diagnostic process, cancer epidemiology, approaches to mitigate disparities and promote equity in diagnosis, novel diagnostic strategies and tools, and strategies to improve the overall system of cancer diagnosis. This workshop was the third in a series on diagnostic excellence funded by the Gordon and Betty Moore Foundation. This Proceedings of a Workshop-in Brief highlights the presentations and discussions that occurred at the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Balogh, Erin %E Patlak, Margie %E Nass, Sharyl J. %T Cancer Care in Low-Resource Areas: Cancer Treatment, Palliative Care, and Survivorship Care: Proceedings of a Workshop %@ 978-0-309-45799-6 %D 2017 %U https://nap.nationalacademies.org/catalog/24743/cancer-care-in-low-resource-areas-cancer-treatment-palliative-care %> https://nap.nationalacademies.org/catalog/24743/cancer-care-in-low-resource-areas-cancer-treatment-palliative-care %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 126 %X Though cancer was once considered to be a problem primarily in wealthy nations, low- and middle-income countries now bear a majority share of the global cancer burden, and cancer often surpasses the burden of infectious diseases in these countries. Effective low-cost cancer control options are available for some malignancies, with the World Health Organization estimating that these interventions could facilitate the prevention of approximately one-third of cancer deaths worldwide. Effective cancer treatment approaches are also available and can reduce the morbidity and mortality due to cancer in low-resource areas. But these interventions remain inaccessible for many people in the world, especially those residing in low-resource communities that are characterized by a lack of funds—on an individual or a societal basis—to cover health infrastructure and care costs. As a result, worse outcomes for patients with cancer are more common in low- and middle-income countries compared with high-income countries. Few guidelines and strategies for cancer control consider the appropriateness and feasibility of interventions in low-resource settings, and this may undermine the effectiveness of care. Recognizing the challenges of providing cancer care in resource constrained settings, the National Academies of Sciences, Engineering, and Medicine developed a two- workshop series examining cancer care in low-resource communities, building on prior work of the National Academies. The first workshop, held in October 2015, focused on cancer prevention and early detection. The second workshop was held in November 2016, and focused on cancer treatment, palliative care, and survivorship care in low-resource areas. This publication summarizes the presentations and discussions of this workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Amankwah, Francis %E Balogh, Erin %E Johnson, Anne Frances %E Nass, Sharyl %T Innovation in Cancer Care and Cancer Research in the Context of the COVID-19 Pandemic: Proceedings of a Workshop %@ 978-0-309-27762-4 %D 2022 %U https://nap.nationalacademies.org/catalog/26470/innovation-in-cancer-care-and-cancer-research-in-the-context-of-the-covid-19-pandemic %> https://nap.nationalacademies.org/catalog/26470/innovation-in-cancer-care-and-cancer-research-in-the-context-of-the-covid-19-pandemic %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 76 %X The COVID-19 pandemic has led to dramatic adjustments in cancer care delivery and cancer research. To examine these changes, the National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine convened a virtual workshop, Innovation in Cancer Care and Cancer Research in the Context of the COVID-19 Pandemic, in July 2021. Workshop speakers considered the lessons learned from these adaptations in order to improve the delivery of high-quality cancer care and the conduct of cancer clinical trials in the post-pandemic era. This Proceedings of a Workshop highlights presentations and discussions from the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Balogh, Erin %E Snair, Megan %E Nass, Sharyl %T Advancing Progress in Cancer Prevention and Risk Reduction: Proceedings of a Workshop %@ 978-0-309-70285-0 %D 2023 %U https://nap.nationalacademies.org/catalog/27026/advancing-progress-in-cancer-prevention-and-risk-reduction-proceedings-of %> https://nap.nationalacademies.org/catalog/27026/advancing-progress-in-cancer-prevention-and-risk-reduction-proceedings-of %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 94 %X The National Academies National Cancer Policy Forum hosted a Summer 2022 workshop to explore the current state of knowledge regarding risk factors for cancer and best practices for cancer prevention and risk reduction interventions. Speakers reviewed the current evidence base, examined best practices and innovative approaches for clinic- and population-based cancer prevention, and discussed strategies to promote effective communication about cancer prevention. This Proceedings of a Workshop summarizes the discussions held during the workshop. This workshop is the second in a series examining policy issues in cancer prevention and cancer screening. The first workshop, which took place in 2020, focused on advancing the development and implementation of effective, high-quality cancer screening. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Graig, Laurene %E Alper, Joe %T Integrating the Patient and Caregiver Voice into Serious Illness Care: Proceedings of a Workshop %@ 978-0-309-46028-6 %D 2017 %U https://nap.nationalacademies.org/catalog/24802/integrating-the-patient-and-caregiver-voice-into-serious-illness-care %> https://nap.nationalacademies.org/catalog/24802/integrating-the-patient-and-caregiver-voice-into-serious-illness-care %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 100 %X Millions of people—infants, children, adults, and their families—are currently coping with serious illness in the United States. Efforts are intensifying to improve overall care quality through the delivery of person-centered and family-oriented services, for patients of all ages and across disease stages, care settings, and specialties. While aging Baby Boomers are increasing the proportion of patients in the Medicare population over time, the sickest and most vulnerable patients needing health system support and other services to meet their complex needs can be found across the age spectrum and in a broad range of care settings, from perinatal care to geriatric care. Recognizing the need to thoughtfully consider and address the challenges and opportunities in efforts to improve care quality and value, the Roundtable on Quality Care for People with Serious Illness of the National Academies of Sciences, Engineering, and Medicine held the public workshop Integrating the Patient and Caregiver Voice into Serious Illness Care, on December 15, 2016, in Washington, DC. This workshop was the first in a series planned by the roundtable, and was designed specifically to bring together diverse personal perspectives and experiences about priorities and values that are important to patients and families coping with serious illness, and to consider solutions that support integration of these priorities and values in practice. This publication summarizes the presentations and discussions from the workshop. %0 Book %A Institute of Medicine %E Patlak, Margie %E Micheel, Christine %E German, Robert %T Implementing Colorectal Cancer Screening: Workshop Summary %@ 978-0-309-12139-2 %D 2008 %U https://nap.nationalacademies.org/catalog/12239/implementing-colorectal-cancer-screening-workshop-summary %> https://nap.nationalacademies.org/catalog/12239/implementing-colorectal-cancer-screening-workshop-summary %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 128 %X The IOM's National Cancer Policy Board estimated in 2003 that even modest efforts to implement known tactics for cancer prevention and early detection could result in up to a 29 percent drop in cancer deaths in about 20 years. The IOM's National Cancer Policy Forum, which succeeded the Board after it was disbanded in 2005, continued the Board's work to outline ways to increase screening in the U.S. On February 25 and 26, 2008, the Forum convened a workshop to discuss screening for colorectal cancer. Colorectal cancer screening remains low, despite strong evidence that screening prevents deaths. With the aim to make recommended colorectal cancer screening more widespread, the workshop discussed steps to be taken at the clinic, community, and health system levels. Workshop speakers, representing a broad spectrum of leaders in the field, identified major barriers to increased screening and described strategies to overcome these obstacles. This workshop summary highlights the information presented, as well as the subsequent discussion about actions needed to increase colorectal screening and, ultimately, to prevent more colorectal cancer deaths. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Alper, Joe %E McHugh, M. Kelly %T The Roles of Trust and Health Literacy in Achieving Health Equity: Community Settings: Proceedings of a Workshop-in Brief %D 2023 %U https://nap.nationalacademies.org/catalog/26889/the-roles-of-trust-and-health-literacy-in-achieving-health-equity %> https://nap.nationalacademies.org/catalog/26889/the-roles-of-trust-and-health-literacy-in-achieving-health-equity %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 10 %X The National Academies Roundtable on Health Literacy convened the third of three workshops to address the themes of trust and positive health equity outcomes that arise from strategic community-based organization practices. Given the historical and current reasons individuals and communities with marginalized identities have to mistrust public health communications and institutions, health literacy is essential. To bolster mutual trust, hospitals, payers, providers, and public health professionals should have the cultural competence and humility to match the health literacy needed from their patients.This Proceedings document summarizes workshop discussions. %0 Book %A Institute of Medicine %E Anderson, Karen M. %E Olson, Steve %T Leveraging Culture to Address Health Inequalities: Examples from Native Communities: Workshop Summary %@ 978-0-309-29256-6 %D 2013 %U https://nap.nationalacademies.org/catalog/18496/leveraging-culture-to-address-health-inequalities-examples-from-native-communities %> https://nap.nationalacademies.org/catalog/18496/leveraging-culture-to-address-health-inequalities-examples-from-native-communities %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 106 %X Leveraging Culture to Address Health Inequalities: Examples from Native Communities is the summary of a workshop convened in November 2012 by the Roundtable on the Promotion of Health Equity and the Elimination of Health Disparities of the Institute of Medicine. The workshop brought together more than 100 health care providers, policy makers, program administrators, researchers, and Native advocates to discuss the sizable health inequities affecting Native American, Alaska Native, First Nation, and Pacific Islander populations and the potential role of culture in helping to reduce those inequities. This report summarizes the presentations and discussion of the workshop and includes case studies that examine programs aimed at diabetes prevention and management and cancer prevention and treatment programs. In Native American tradition, the medicine wheel encompasses four different components of health: physical, emotional, mental, and spiritual. Health and well-being require balance within and among all four components. Thus, whether someone remains healthy depends as much on what happens around that person as on what happens within. Leveraging Culture to Address Health Inequalities addresses the broad role of culture in contributing to and ameliorating health inequities. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Maitin-Shepard, Melissa %E Ortiz, Katiria %E Nass, Sharyl %T Key Operational Characteristics and Functionalities of a State-of-the-Art Patient Scheduling System: Proceedings of a Workshop—in Brief %D 2019 %U https://nap.nationalacademies.org/catalog/25556/key-operational-characteristics-and-functionalities-of-a-state-of-the-art-patient-scheduling-system %> https://nap.nationalacademies.org/catalog/25556/key-operational-characteristics-and-functionalities-of-a-state-of-the-art-patient-scheduling-system %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %K Computers and Information Technology %P 10 %X Current electronic health care systems are archaic and face similar challenges that limit efficient patient scheduling and health care accessibility. A large initiative to improve these systems is underway because these challenges exist across many electronic health care systems. However, these challenges are exacerbated within the Department of Veterans Affairs (VA) Healthcare System due to uniquely complex aspects of that system and its patients. The National Academies convened a two-day workshop to explore important operational characteristics and functionalities of effective patient scheduling systems. This workshop built upon a 2015 Institute of Medicine report that identified hurdles to timely patient scheduling specifically within the Veterans Health Administration, who administers the VA system. Discussions at the workshop reviewed past healthcare system patient, clinician, and scheduler experiences and technologies. They also highlighted the importance of design, implementation, and adaptability of scheduling systems. This publication summarizes the presentations from the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Alper, Joe %E McHugh, M. Kelly %T The Roles of Trust and Health Literacy in Achieving Health Equity: Clinical Settings: Proceedings of a Workshop-in Brief %D 2023 %U https://nap.nationalacademies.org/catalog/26888/the-roles-of-trust-and-health-literacy-in-achieving-health-equity %> https://nap.nationalacademies.org/catalog/26888/the-roles-of-trust-and-health-literacy-in-achieving-health-equity %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 8 %X The National Academies Roundtable on Health Literacy convened the first of three workshops to explore the positive impacts on health equity improved literacy practices in clinical settings can have. To relate and inspire confidence, physicians must communicate plainly and at the literacy level of the patient and recognize the knowledge the patient brings. Equality and equity are not the same, and treating every patient, their conditions, history, and identity, identically can interfere with trust. Diversifying the work force can facilitate better clinical practices that honor all patients. This Proceedings document summarizes workshop discussions. %0 Book %A Transportation Research Board %A National Academies of Sciences, Engineering, and Medicine %E Wizemann, Theresa %E Baciu, Alina %T Exploring Data and Metrics of Value at the Intersection of Health Care and Transportation: Proceedings of a Workshop %@ 978-0-309-44935-9 %D 2016 %U https://nap.nationalacademies.org/catalog/23638/exploring-data-and-metrics-of-value-at-the-intersection-of-health-care-and-transportation %> https://nap.nationalacademies.org/catalog/23638/exploring-data-and-metrics-of-value-at-the-intersection-of-health-care-and-transportation %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %K Transportation and Infrastructure %P 268 %X Evidence from the public health sector demonstrates that health care is only one of the determinants of health, which also include genes, behavior, social factors, and the built environment. These contextual elements are key to understanding why health care organizations are motivated to focus beyond their walls and to consider and respond in unprecedented ways to the social needs of patients, including transportation needs. In June 2016 the National Academies of Sciences, Engineering, and Medicine held a joint workshop to explore partnerships, data, and measurement at the intersection of the health care and transportation sectors. This publication summarizes the presentations and discussions from the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Haag, Tamara %E Matney, Chanel %E Bowman, Katherine %T Improving Systems of Follow-Up Care for Traumatic Brain Injury: Proceedings of a Workshop %@ 978-0-309-70826-5 %D 2023 %U https://nap.nationalacademies.org/catalog/27205/improving-systems-of-follow-up-care-for-traumatic-brain-injury %> https://nap.nationalacademies.org/catalog/27205/improving-systems-of-follow-up-care-for-traumatic-brain-injury %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 114 %X The National Academies Forum on Traumatic Brain Injury (TBI) hosted a hybrid public workshop in May 2023 to explore what is needed to better serve adult TBI patients who require follow-up care in support of their recovery at home. Speakers discussed when and how to follow up with less-severe TBI patients who have been discharged to their homes after a brief period of acute care, and the varied needs, issues, and considerations that relate to outpatient care and at-home symptom management during the approximately 6-month period following injury.This publication summarizes the presentation and discussion of the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Anderson, Karen M. %E Olson, Steve %T Strategies for Ensuring Diversity, Inclusion, and Meaningful Participation in Clinical Trials: Proceedings of a Workshop %@ 978-0-309-44357-9 %D 2016 %U https://nap.nationalacademies.org/catalog/23530/strategies-for-ensuring-diversity-inclusion-and-meaningful-participation-in-clinical-trials %> https://nap.nationalacademies.org/catalog/23530/strategies-for-ensuring-diversity-inclusion-and-meaningful-participation-in-clinical-trials %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 84 %X Even as the U.S. population becomes steadily more diverse, minorities and women remain underrepresented in clinical trials to develop new drugs and medical devices. Although progress in increasing minority participation in clinical trials has occurred, participation rates do not fully represent the overall population of minorities in the United States. This underrepresentation threatens the health of both these populations and the general population, since greater minority representation could reveal factors that affect health in all populations. Federal legislation has sought to increase the representation of minorities and women in clinical trials, but legislation by itself has not been sufficient to overcome the many barriers to greater participation. Only much broader changes will bring about the meaningful participation of all population groups in the clinical research needed to improve health. To examine the barriers to participation in clinical trials and ways of overcoming those barriers, the National Academies of Sciences, Engineering, and Medicine held a workshop in April 2015. This publication summarizes the presentations and discussions from the workshop. %0 Book %A Institute of Medicine %E Wizemann, Theresa %E Thompson, Darla %T The Role and Potential of Communities in Population Health Improvement: Workshop Summary %@ 978-0-309-31206-6 %D 2015 %U https://nap.nationalacademies.org/catalog/18946/the-role-and-potential-of-communities-in-population-health-improvement %> https://nap.nationalacademies.org/catalog/18946/the-role-and-potential-of-communities-in-population-health-improvement %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 86 %X The Role and Potential of Communities in Population Health Improvement is the summary of a workshop held by the Institute of Medicine Roundtable on Population Health Improvement in April 2014 that featured invited speakers from community groups that have taken steps to improve the health of their communities. Speakers from communities across the United States discussed the potential roles of communities for improving population health. The workshop focused on youth organizing, community organizing or other types of community participation, and partnerships between community and institutional actors. This report explores the roles and potential of the community as leaders, partners, and facilitators in transforming the social and environmental conditions that shape health and well-being at the local level.