@BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Joe Alper and Melissa French and Alexis Wojtowicz", title = "Health Systems Interventions to Prevent Firearm Injuries and Death: Proceedings of a Workshop", isbn = "978-0-309-48839-6", abstract = "Firearm injuries and death are a serious public health concern in the United States. Firearm-related injuries account for tens of thousands of premature deaths of adults and children each year and significantly increase the burden of injury and disability. Firearm injuries are also costly to the health system, accounting for nearly $3 billion in emergency department and inpatient care each year.\n\nThe National Academies of Sciences, Engineering, and Medicine convened a workshop to examine the roles that health systems can play in addressing the epidemic of firearm violence in the United States. This publication summarizes the presentations and discussions from the workshop.", url = "https://nap.nationalacademies.org/catalog/25354/health-systems-interventions-to-prevent-firearm-injuries-and-death-proceedings", year = 2019, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine and National Research Council", editor = "Philip Aspden", title = "Medical Innovation in the Changing Healthcare Marketplace: Conference Summary", isbn = "978-0-309-08416-1", abstract = "A wave of new health care innovation and growing demand for health care, coupled with uncertain\nproductivity improvements, could severely challenge efforts to control future health care costs. A committee of\nthe National Research Council and the Institute of Medicine organized a conference to examine key health care\ntrends and their impact on medical innovation. The conference addressed the following question: In an\nenvironment of renewed concern about rising health care costs, where can public policy stimulate or remove\ndisincentives to the development, adoption and diffusion of high-value innovation in diagnostics, therapeutics,\nand devices?", url = "https://nap.nationalacademies.org/catalog/10358/medical-innovation-in-the-changing-healthcare-marketplace-conference-summary", year = 2002, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Sharon Murphy and Margie Patlak", title = "A Foundation for Evidence-Driven Practice: A Rapid Learning System for Cancer Care: Workshop Summary", isbn = "978-0-309-15126-9", abstract = "The IOM's National Cancer Policy Forum held a workshop October 5-6, 2009, to examine how to apply the concept of a 'rapid learning health system' to the problem of cancer. This document summarizes the workshop.", url = "https://nap.nationalacademies.org/catalog/12868/a-foundation-for-evidence-driven-practice-a-rapid-learning-system", year = 2010, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Cheryl Ulmer and Bernadette McFadden and David R. Nerenz", title = "Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement", isbn = "978-0-309-14012-6", abstract = "The goal of eliminating disparities in health care in the United States remains elusive. Even as quality improves on specific measures, disparities often persist. Addressing these disparities must begin with the fundamental step of bringing the nature of the disparities and the groups at risk for those disparities to light by collecting health care quality information stratified by race, ethnicity and language data. Then attention can be focused on where interventions might be best applied, and on planning and evaluating those efforts to inform the development of policy and the application of resources. A lack of standardization of categories for race, ethnicity, and language data has been suggested as one obstacle to achieving more widespread collection and utilization of these data. \nRace, Ethnicity, and Language Data identifies current models for collecting and coding race, ethnicity, and language data; reviews challenges involved in obtaining these data, and makes recommendations for a nationally standardized approach for use in health care quality improvement. \n ", url = "https://nap.nationalacademies.org/catalog/12696/race-ethnicity-and-language-data-standardization-for-health-care-quality", year = 2009, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", title = "Protecting Data Privacy in Health Services Research", isbn = "978-0-309-07187-1", abstract = "The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.", url = "https://nap.nationalacademies.org/catalog/9952/protecting-data-privacy-in-health-services-research", year = 2000, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Gooloo S. Wunderlich and Peter O. Kohler", title = "Improving the Quality of Long-Term Care", isbn = "978-0-309-06498-9", abstract = "Among the issues confronting America is long-term care for frail, older persons and others with chronic conditions and functional limitations that limit their ability to care for themselves. \n\nImproving the Quality of Long-Term Care takes a comprehensive look at the quality of care and quality of life in long-term care, including nursing homes, home health agencies, residential care facilities, family members and a variety of others. This book describes the current state of long-term care, identifying problem areas and offering recommendations for federal and state policymakers. \n\nWho uses long-term care? How have the characteristics of this population changed over time? What paths do people follow in long term care? The committee provides the latest information on these and other key questions. \n\nThis book explores strengths and limitations of available data and research literature especially for settings other than nursing homes, on methods to measure, oversee, and improve the quality of long-term care. The committee makes recommendations on setting and enforcing standards of care, strengthening the caregiving workforce, reimbursement issues, and expanding the knowledge base to guide organizational and individual caregivers in improving the quality of care.\n", url = "https://nap.nationalacademies.org/catalog/9611/improving-the-quality-of-long-term-care", year = 2001, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine and National Research Council", editor = "Maria Hewitt and Joseph V. Simone", title = "Enhancing Data Systems to Improve the Quality of Cancer Care", isbn = "978-0-309-08649-3", abstract = "One of the barriers to improving the quality of cancer care in the United States is the inadequacy of data systems. Out-of-date or incomplete information about the performance of doctors, hospitals, health plans, and public agencies makes it hard to gauge the quality of care. Augmenting today's data systems could start to fill the gap.\nThis report examines the strengths and weaknesses of current systems and makes recommendations for enhancing data systems to improve the quality of cancer care. The board's recommendations fall into three key areas:\n\n Enhance key elements of the data system infrastructure (i.e., quality-of-care measures, cancer registries and databases, data collection technologies, and analytic capacity).\n Expand support for analyses of quality of cancer care using existing data systems.\n Monitor the effectiveness of data systems to promote quality improvement within health systems.\n", url = "https://nap.nationalacademies.org/catalog/9970/enhancing-data-systems-to-improve-the-quality-of-cancer-care", year = 2000, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine and National Research Council", editor = "Kathleen M. Foley and Hellen Gelband", title = "Improving Palliative Care for Cancer", isbn = "978-0-309-07402-5", abstract = "In our society\u2019s aggressive pursuit of cures for cancer, we have neglected symptom control and comfort care. Less than one percent of the National Cancer Institute\u2019s budget is spent on any aspect of palliative care research or education, despite the half million people who die of cancer each year and the larger number living with cancer and its symptoms. Improving Palliative Care for Cancer examines the barriers\u2014scientific, policy, and social\u2014that keep those in need from getting good palliative care. It goes on to recommend public- and private-sector actions that would lead to the development of more effective palliative interventions; better information about currently used interventions; and greater knowledge about, and access to, palliative care for all those with cancer who would benefit from it. ", url = "https://nap.nationalacademies.org/catalog/10149/improving-palliative-care-for-cancer", year = 2001, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", title = "Preserving Public Trust: Accreditation and Human Research Participant Protection Programs", isbn = "978-0-309-07328-8", abstract = "Amid increasing concern for patient safety and the shutdown of prominent research operations, the need to improve protections for individuals who volunteer to participate in research has become critical. Preserving Public Trust: Accreditation and Human Research Participant Protection Programs considers the possible impact of creating an accreditation system to raise the performance of local protection mechanisms. In the United States, the system for human research participant protections has centered on the Institutional Review Board (IRB); however, this report envisions a broader system with multiple functional elements. In this context, two draft sets of accreditation standards are reviewed (authored by Public Responsibility in Medicine & Research and the National Committee for Quality Assurance) for their specific content in core areas, as well as their objectivity and validity as measurement tools. The recommendations in the report support the concept of accreditation as a quality improvement strategy, suggesting that the model should be initially pursued through pilot testing of the proposed accreditation programs.\n", url = "https://nap.nationalacademies.org/catalog/10085/preserving-public-trust-accreditation-and-human-research-participant-protection-programs", year = 2001, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Daniel D. Federman and Kathi E. Hanna and Laura Lyman Rodriguez", title = "Responsible Research: A Systems Approach to Protecting Research Participants", isbn = "978-0-309-08488-8", abstract = "When 18-year-old Jesse Gelsinger died in a gene transfer study at the University of Pennsylvania, the national spotlight focused on the procedures used to ensure research participants' safety and their capacity to safeguard the well-being of those who volunteer for research studies.\nResponsible Research outlines a three-pronged approach to ensure the protection of every participant through the establishment of effective Human Research Participant Protection Programs (HRPPPs). The approach includes:\n\n Improved research review processes,\n Recognition and integration of research participants' contributions to the system, and\n Vigilant maintenance of HRPPP performance.\n\nIssues addressed in the book include the need for in-depth, complimentary reviews of science, ethics, and conflict of interest reviews; desired qualifications for investigators and reviewers; the process of informed consent; federal and institutional oversight; and the role of accreditation. Recommendations for areas of key interest include suggestions for legislative approaches, compensation for research-related injury, and the refocusing of the mission of institutional review boards. \t Responsible Research will be important to anyone interested in the issues that are relevant to the practice of using human subjects as research participants, but especially so to policy makers, research administrators, investigators, and research sponsors\u2013but also including volunteers who may agree to serve as research participants.", url = "https://nap.nationalacademies.org/catalog/10508/responsible-research-a-systems-approach-to-protecting-research-participants", year = 2003, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", title = "Calling the Shots: Immunization Finance Policies and Practices", isbn = "978-0-309-07029-4", abstract = "Calling the Shots examines the basic strategies that finance the national immunization system in the current health care climate. It is a comprehensive volume, rich with data and highlighted examples, that explores:\n\n The evolution of the system in light of changing U.S. demographics, development of new vaccines, and other factors.\n The effectiveness of public health and health insurance strategies, with special emphasis on the performance of the \"Section 317\" program.\n The condition of the infrastructure for control and prevention of infectious disease, surveillance of vaccines rates and safety, and efforts to sustain high coverage.\n\nCalling the Shots will be an indispensable resource to those responsible for maintaining our nation's vaccine vigilance.", url = "https://nap.nationalacademies.org/catalog/9836/calling-the-shots-immunization-finance-policies-and-practices", year = 2000, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Howard Frumkin and Christine Coussens", title = "Green Healthcare Institutions: Health, Environment, and Economics: Workshop Summary", isbn = "978-0-309-10592-7", abstract = "Green Healthcare Institutions : Health, Environment, and Economics, Workshop Summary is based on the ninth workshop in a series of workshops sponsored by the Roundtable on Environmental Health Sciences, Research, and Medicine since the roundtable began meeting in 1998. When choosing workshops and activities, the roundtable looks for areas of mutual concern and also areas that need further research to develop a strong environmental science background.\n\nThis workshop focused on the environmental and health impacts related to the design, construction, and operations of healthcare facilities, which are part of one of the largest service industries in the United States. Healthcare institutions are major employers with a considerable role in the community, and it is important to analyze this significant industry. The environment of healthcare facilities is unique; it has multiple stakeholders on both sides, as the givers and the receivers of care. In order to provide optimal care, more research is needed to determine the impacts of the built environment on human health.\n\nThe scientific evidence for embarking on a green building agenda is not complete, and at present, scientists have limited information. Green Healthcare Institutions : Health, Environment, and Economics, Workshop Summary captures the discussions and presentations by the speakers and participants; they identified the areas in which additional research is needed, the processes by which change can occur, and the gaps in knowledge. ", url = "https://nap.nationalacademies.org/catalog/11878/green-healthcare-institutions-health-environment-and-economics-workshop-summary", year = 2007, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Annetine C. Gelijns and Holly V. Dawkins", title = "Adopting New Medical Technology", isbn = "978-0-309-05035-7", abstract = "What information and decision-making processes determine how and whether an experimental medical technology becomes accepted and used?\nAdopting New Medical Technology reviews the strengths and weaknesses of present coverage and adoption practices, highlights opportunities for improving both the decision-making processes and the underlying information base, and considers approaches to instituting a much-needed increase in financial support for evaluative research.\nEssays explore the nature of technological change; the use of technology assessment in decisions by health care providers and federal, for-profit, and not-for-profit payers; the role of the courts in determining benefits coverage; strengthening the connections between evaluative research and coverage decision-making; manufacturers' responses to the increased demand for outcomes research; and the implications of health care reform for technology policy.", url = "https://nap.nationalacademies.org/catalog/4417/adopting-new-medical-technology", year = 1994, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", title = "Community Oriented Primary Care: A Practical Assessment, Vol. 2: Case Studies", isbn = "978-0-309-07451-3", url = "https://nap.nationalacademies.org/catalog/672/community-oriented-primary-care-a-practical-assessment-vol-2-case", year = 1984, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine and National Academies of Sciences, Engineering, and Medicine", title = "Roundtable on Translating Genomic-Based Research for Health: 2013 Annual Report", url = "https://nap.nationalacademies.org/catalog/26252/roundtable-on-translating-genomic-based-research-for-health-2013-annual", year = 2014, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine", editor = "Steve Olson", title = "The Current State of Obesity Solutions in the United States: Workshop in Brief", abstract = "On January 7, 2014, the newly formed Roundtable on Obesity Solutions of the Institute of Medicine held its first public event, a half-day workshop titled \"The Current State of Obesity Solutions in the United States.\" The purpose of the roundtable, which includes representatives from public health, health care, government, the food industry, education, philanthropy, the nonprofit sector, and academia, is to engage leadership from multiple sectors to discuss potential solutions to the obesity crisis. Through meetings, public workshops, background papers, and innovation collaboratives, the roundtable will foster an ongoing dialogue about critical and emerging implementation, policy, and research topics to accelerate progress in obesity prevention and care. This report summarizes the presentations and discussions of the workshop.", url = "https://nap.nationalacademies.org/catalog/21680/the-current-state-of-obesity-solutions-in-the-united-states", year = 2014, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "Institute of Medicine and National Academies of Sciences, Engineering, and Medicine", title = "Roundtable on Translating Genomic-Based Research for Health: 2010 Annual Report", url = "https://nap.nationalacademies.org/catalog/26249/roundtable-on-translating-genomic-based-research-for-health-2010-annual", year = 2011, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academy of Medicine", editor = "Joe Selby and Eric Larson and Rainu Kaushal and Maryan Zirkle and Marianne Hamilton Lopez and Danielle Whicher", title = "Accelerating Medical Evidence Generation and Use: Summary of a Meeting Series", isbn = "978-0-309-70562-2", abstract = "In 2016, the National Academy of Medicine (NAM) hosted a series of meetings, which was sponsored by the Patient-Centered Outcomes Research Institute, with support from NAM's Executive Leadership Network. The series underscored the importance of partnerships between researchers and health system leadership and considered opportunities to build institutional capacity, cross-institutional synergy, and system-wide learning. During these meetings, health system executives, researchers, and others discussed building infrastructure that simultaneously facilitates care delivery, care improvement and evidence development. The vision is a digital system-wide progress toward continuous and seamless learning and improvement throughout health and health care. This publication aims to answer the following questions:How can evidence development be accelerated, given current knowledge and resources?What might that mean for better outcomes for patients and greater efficiency in health care?What system and culture changes are required to generate evidence from the care experience?How much progress has been made in preparing the field for the paradigm shift?What are the hallmarks of successful partnerships among care executives and research leaders?What are the priorities in advancing executive leadership to the next level for continuously learning health and health care?", url = "https://nap.nationalacademies.org/catalog/27123/accelerating-medical-evidence-generation-and-use-summary-of-a-meeting", year = 2017, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Leslie Pray", title = "Protecting the Health and Well-Being of Communities in a Changing Climate: Proceedings of a Workshop", isbn = "978-0-309-46345-4", abstract = "On March 13, 2017, the Roundtable on Environmental Health Sciences, Research, and Medicine and the Roundtable on Population Health Improvement jointly convened a 1-day public workshop in Washington, DC, to explore potential strategies for public health, environmental health, health care, and related stakeholders to help communities and regions to address and mitigate the health effects of climate change. Participants discussed the perspectives of civic, government, business, and health-sector leaders, and existing research, best practices, and examples that inform stakeholders and practitioners on approaches to support mitigation of and adaptation to climate change and its effects on population health. This publication summarizes the presentations and discussions from the workshop.", url = "https://nap.nationalacademies.org/catalog/24846/protecting-the-health-and-well-being-of-communities-in-a-changing-climate", year = 2018, publisher = "The National Academies Press", address = "Washington, DC" } @BOOK{NAP author = "National Academies of Sciences, Engineering, and Medicine", editor = "Karen M. Anderson and Steve Olson", title = "The Promises and Perils of Digital Strategies in Achieving Health Equity: Workshop Summary", isbn = "978-0-309-43891-9", abstract = "Health care is in the midst of a dramatic transformation in the United States. Spurred by technological advances, economic imperatives, and governmental policies, information technologies are rapidly being applied to health care in an effort to improve access, enhance quality, and decrease costs. At the same time, the use of technologies by the consumers of health care is changing how people interact with the health care system and with health information. \n\nThese changes in health care have the potential both to exacerbate and to diminish the stark disparities in health and well-being that exist among population groups in the United States. If the benefits of technology flow disproportionately to those who already enjoy better coverage, use, and outcomes than disadvantaged groups, heath disparities could increase. But if technologies can be developed and implemented in such a way to improve access and enhance quality for the members of all groups, the ongoing transformation of health care could reduce the gaps among groups while improving health care for all. \n\nTo explore the potential for further insights into, and opportunities to address, disparities in underserved populations the National Academies of Sciences, Engineering, and Medicine held a workshop in October 2014. The workshop focused on (1) how communities are using digital health technologies to improve health outcomes for racial and ethnic minority populations, (2) how community engagement can improve access to high-quality health information for members of these groups, and (3) on models of successful technology-based strategies to reduce health disparities. This report summarizes the presentations and discussions at the workshop.", url = "https://nap.nationalacademies.org/catalog/23439/the-promises-and-perils-of-digital-strategies-in-achieving-health-equity", year = 2016, publisher = "The National Academies Press", address = "Washington, DC" }