TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Paul A. Volberding A2 - Carol Mason Spicer A2 - Tom Cartaxo A2 - Laura Aiuppa TI - Childhood Cancer and Functional Impacts Across the Care Continuum SN - DO - 10.17226/25944 PY - 2021 UR - https://nap.nationalacademies.org/catalog/25944/childhood-cancer-and-functional-impacts-across-the-care-continuum PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - Since the late 1960s, the survival rate in children and adolescents diagnosed with cancer has steadily improved, with a corresponding decline in the cancer-specific death rate. Although the improvements in survival are encouraging, they have come at the cost of acute, chronic, and late adverse effects precipitated by the toxicities associated with the individual or combined use of different types of treatment (e.g., surgery, radiation, chemotherapy). In some cases, the impairments resulting from cancer and its treatment are severe enough to qualify a child for U.S. Social Security Administration disability benefits. At the request of Social Security Administration, Childhood Cancer and Functional Impacts Across the Care Continuum provides current information and findings and conclusions regarding the diagnosis, treatment, and prognosis of selected childhood cancers, including different types of malignant solid tumors, and the effect of those cancers on children’s health and functional capacity, including the relative levels of functional limitation typically associated with the cancers and their treatment. This report also provides a summary of selected treatments currently being studied in clinical trials and identifies any limitations on the availability of these treatments, such as whether treatments are available only in certain geographic areas. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Theresa M. Wizemann A2 - Kathryn Asalone A2 - Meredith Hackmann A2 - Sarah Beachy TI - Realizing the Potential of Genomics across the Continuum of Precision Health Care: Proceedings of a Workshop SN - DO - 10.17226/26917 PY - 2023 UR - https://nap.nationalacademies.org/catalog/26917/realizing-the-potential-of-genomics-across-the-continuum-of-precision-health-care PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - The National Academies Roundtable on Genomics and Precision Health, in collaboration with the National Cancer Policy Forum, hosted a public workshop that examined how genomic data are used in health care, outside of the traditional settings for clinical genetics. The workshop identified opportunities for advancement of precision health care delivery. The event also explored how patients, clinicians, and payers assess and act upon the risks and benefits of genomic screening and diagnostic testing. Discussions focused on strategies to ensure that genomic applications are responsibly and equitably adopted to benefit populations as well as individuals over time. This Proceedings of a Workshop summarizes content from the event. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Erin Balogh A2 - Margie Patlak A2 - Sharyl J. Nass TI - Incorporating Weight Management and Physical Activity Throughout the Cancer Care Continuum: Proceedings of a Workshop SN - DO - 10.17226/24925 PY - 2018 UR - https://nap.nationalacademies.org/catalog/24925/incorporating-weight-management-and-physical-activity-throughout-the-cancer-care-continuum PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - The National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a public workshop, Incorporating Weight Management and Physical Activity Throughout the Cancer Care Continuum, on February 13 and 14, 2017, in Washington, DC. The purpose of this workshop was to highlight the current evidence base, gaps in knowledge, and research needs on the associations among obesity, physical activity, weight management, and health outcomes for cancer survivors, as well as to examine the effectiveness of interventions for promoting physical activity and weight management among people living with or beyond cancer. Workshop sessions also reviewed the opportunities and challenges for providing weight management and physical activity interventions to cancer survivors. This publication summarizes the presentations and discussions from the workshop. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Francis Amankwah A2 - Erin Balogh A2 - Melissa Maitin-Shepard A2 - Sharyl Nass TI - The Impact of the Affordable Care Act on Cancer Prevention and Cancer Care: Proceedings of a Workshop SN - DO - 10.17226/26400 PY - 2022 UR - https://nap.nationalacademies.org/catalog/26400/the-impact-of-the-affordable-care-act-on-cancer-prevention-and-cancer-care PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - The National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine convened a virtual workshop in March 2021 to examine the existing evidence base on how the Patient Protection and Affordable Care Act (ACA) has altered the landscape of cancer prevention and care delivery in the United States. The workshop featured presentations and discussions reviewing the effects of the ACA on people at risk for or living with cancer and providing insight into remaining policy challenges that could inform future efforts to improve and support the delivery of high-quality cancer care across the care continuum. This publication provides a high-level summary of the discussions presented during the workshop. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Jennifer Lalitha Flaubert A2 - Tracy Lustig A2 - Megan Snair TI - Advancing Diagnostic Excellence for Older Adults: Proceedings of a Workshop–in Brief DO - 10.17226/26789 PY - 2022 UR - https://nap.nationalacademies.org/catalog/26789/advancing-diagnostic-excellence-for-older-adults-proceedings-of-a-workshop PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - To examine the current state of the science and research opportunities for improving diagnosis in older adults within the U.S. health care system, the Board on Health Care Services of the National Academies of Sciences, Engineering, and Medicine hosted a hybrid workshop on July 21, 2022. The workshop highlighted unique challenges faced in achieving diagnostic excellence for older adults, opportunities and obstacles to improving diagnosis, and strategies and interventions to promote diagnostic excellence across the care continuum. This workshop was the fifth in a series on diagnostic excellence funded by the Gordon and Betty Moore Foundation, with additional funding provided for this specific workshop by The John A. Hartford Foundation. This Proceedings of a Workshop-in Brief highlights the presentations and discussions that occurred at the workshop. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine TI - The National Imperative to Improve Nursing Home Quality: Honoring Our Commitment to Residents, Families, and Staff SN - DO - 10.17226/26526 PY - 2022 UR - https://nap.nationalacademies.org/catalog/26526/the-national-imperative-to-improve-nursing-home-quality-honoring-our PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - Nursing homes play a unique dual role in the long-term care continuum, serving as a place where people receive needed health care and a place they call home. Ineffective responses to the complex challenges of nursing home care have resulted in a system that often fails to ensure the well-being and safety of nursing home residents. The devastating impact of the COVID-19 pandemic on nursing home residents and staff has renewed attention to the long-standing weaknesses that impede the provision of high-quality nursing home care. With support from a coalition of sponsors, the National Academies of Sciences, Engineering, and Medicine formed the Committee on the Quality of Care in Nursing Homes to examine how the United States delivers, finances, regulates, and measures the quality of nursing home care. The National Imperative to Improve Nursing Home Quality: Honoring Our Commitment to Residents, Families, and Staff identifies seven broad goals and supporting recommendations which provide the overarching framework for a comprehensive approach to improving the quality of care in nursing homes. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Erin Balogh A2 - Francis Amankwah A2 - Theresa Wizemann A2 - Sharyl Nass TI - Promoting Health Equity in Cancer Care: Proceedings of a Workshop SN - DO - 10.17226/26661 PY - 2022 UR - https://nap.nationalacademies.org/catalog/26661/promoting-health-equity-in-cancer-care-proceedings-of-a-workshop PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - Despite advances in the delivery of high-quality cancer care and improvements in patient outcomes in recent years, disparities in cancer incidence, care, and patient outcomes persist. To examine opportunities to improve health equity across the cancer care continuum, the National Cancer Policy Forum and the Roundtable on the Promotion of Health Equity hosted a public workshop, Promoting Health Equity in Cancer Care, on October 25 and October 26, 2021. This virtual workshop featured presentations and panel discussions on topics that included: opportunities to improve equitable access to affordable, high-quality cancer care; strategies to identify and address the intersectionality of structural racism and implicit bias in cancer care delivery; the potential for quality measurement and payment mechanisms to incentivize health equity in cancer care delivery; and clinical practice data collection efforts to better assess and care for people living with and beyond cancer. This publication summarizes the presentation and discussion of the workshop. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Emily Zevon A2 - Erin Balogh A2 - Joe Alper A2 - Sharyl Nass TI - Health Literacy and Communication Strategies in Oncology: Proceedings of a Workshop SN - DO - 10.17226/25664 PY - 2020 UR - https://nap.nationalacademies.org/catalog/25664/health-literacy-and-communication-strategies-in-oncology-proceedings-of-a PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - Health literacy is a critical skill for engaging in healthy behaviors to reduce disease risk and improve health outcomes across the continuum of cancer care. However, estimates suggest that more than one-third of the U.S. adult population has low health literacy, and nearly half of all patients with cancer have difficulty understanding information about their disease or treatment. Low health literacy among patients with cancer is associated with poor health and treatment outcomes, including lower adherence to treatment, higher rates of missed appointments, and an increased risk of hospitalization. Low health literacy can also impede informed decision making, especially as cancer care becomes increasingly complex and as patients and their families take more active roles in treatment decisions. To examine opportunities to improve communication across the cancer care continuum, the National Cancer Policy Forum collaborated with the Roundtable on Health Literacy to host a workshop, Health Literacy and Communication Strategies in Oncology, July 15-16, 2019, in Washington, DC. Patients, patient advocates, clinicians, and researchers, representatives of health care organizations, academic medical centers, insurers, and federal agencies explored the challenges of achieving effective communication in cancer care. This publication summarizes the presentations and discussions of the workshop. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Theresa Wizemann A2 - Amanda Wagner Gee A2 - Carolyn Shore TI - Envisioning a Transformed Clinical Trials Enterprise for 2030: Proceedings of a Workshop SN - DO - 10.17226/26349 PY - 2022 UR - https://nap.nationalacademies.org/catalog/26349/envisioning-a-transformed-clinical-trials-enterprise-for-2030-proceedings-of PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - The evolution of health care is expanding the possibilities for integration of clinical research into the continuum of clinical care; new approaches are enabling the collection of data in real-world settings; and new modalities, such as digital health technologies and artificial intelligence applications, are being leveraged to overcome challenges and advance clinical research. At the same time, the clinical research enterprise is strained by rising costs, varying global regulatory and economic landscapes, increasing complexity of clinical trials, barriers to recruitment and retention of research participants, and a clinical research workforce that is under tremendous demands. Looking ahead to 2030, the Forum on Drug Discovery, Development, and Translation of the National Academies of Sciences, Engineering, and Medicine convened a public workshop for stakeholders from across the drug research and development life cycle to reflect on the lessons learned over the past 10 years and consider opportunities for the future. The workshop was designed to consider goals and priority action items that could advance the vision of a 2030 clinical trials enterprise that is more efficient, effective, person-centered, inclusive, and integrated into the health care delivery system so that outcomes and experiences for all stakeholders are improved. This Proceedings of a Workshop summarizes the presentations and discussions that took place during the four-part virtual public workshop held on January 26, February 9, March 24, and May 11, 2021. ER - TY - BOOK AU - Institute of Medicine A2 - Tracy A. Lustig TI - The Role of Telehealth in an Evolving Health Care Environment: Workshop Summary SN - DO - 10.17226/13466 PY - 2012 UR - https://nap.nationalacademies.org/catalog/13466/the-role-of-telehealth-in-an-evolving-health-care-environment PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - In 1996, the Institute of Medicine (IOM) released its report Telemedicine: A Guide to Assessing Telecommunications for Health Care. In that report, the IOM Committee on Evaluating Clinical Applications of Telemedicine found telemedicine is similar in most respects to other technologies for which better evidence of effectiveness is also being demanded. Telemedicine, however, has some special characteristics-shared with information technologies generally-that warrant particular notice from evaluators and decision makers. Since that time, attention to telehealth has continued to grow in both the public and private sectors. Peer-reviewed journals and professional societies are devoted to telehealth, the federal government provides grant funding to promote the use of telehealth, and the private technology industry continues to develop new applications for telehealth. However, barriers remain to the use of telehealth modalities, including issues related to reimbursement, licensure, workforce, and costs. Also, some areas of telehealth have developed a stronger evidence base than others. The Health Resources and Service Administration (HRSA) sponsored the IOM in holding a workshop in Washington, DC, on August 8-9 2012, to examine how the use of telehealth technology can fit into the U.S. health care system. HRSA asked the IOM to focus on the potential for telehealth to serve geographically isolated individuals and extend the reach of scarce resources while also emphasizing the quality and value in the delivery of health care services. This workshop summary discusses the evolution of telehealth since 1996, including the increasing role of the private sector, policies that have promoted or delayed the use of telehealth, and consumer acceptance of telehealth. The Role of Telehealth in an Evolving Health Care Environment: Workshop Summary discusses the current evidence base for telehealth, including available data and gaps in data; discuss how technological developments, including mobile telehealth, electronic intensive care units, remote monitoring, social networking, and wearable devices, in conjunction with the push for electronic health records, is changing the delivery of health care in rural and urban environments. This report also summarizes actions that the U.S. Department of Health and Human Services (HHS) can undertake to further the use of telehealth to improve health care outcomes while controlling costs in the current health care environment. ER - TY - BOOK TI - PY - UR - PB - The National Academies Press CY - Washington, DC LA - English ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Steve Olson TI - Improving Care to Prevent Suicide Among People with Serious Mental Illness: Proceedings of a Workshop SN - DO - 10.17226/25318 PY - 2019 UR - https://nap.nationalacademies.org/catalog/25318/improving-care-to-prevent-suicide-among-people-with-serious-mental-illness PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine KW - Behavioral and Social Sciences AB - Suicide prevention initiatives are part of much broader systems connected to activities such as the diagnosis of mental illness, the recognition of clinical risk, improving access to care, and coordinating with a broad range of outside agencies and entities around both prevention and public health efforts. Yet suicide is also an intensely personal issue that continues to be surrounded by stigma. On September 11-12, 2018, the National Academies of Sciences, Engineering, and Medicine held a workshop in Washington, DC, to discuss preventing suicide among people with serious mental illness. The workshop was designed to illustrate and discuss what is known, what is currently being done, and what needs to be done to identify and reduce suicide risk. Improving Care to Prevent Suicide Among People with Serious Mental Illness summarizes presentations and discussions of the workshop. ER - TY - BOOK AU - Institute of Medicine TI - The Role of Nutrition in Maintaining Health in the Nation's Elderly: Evaluating Coverage of Nutrition Services for the Medicare Population SN - DO - 10.17226/9741 PY - 2000 UR - https://nap.nationalacademies.org/catalog/9741/the-role-of-nutrition-in-maintaining-health-in-the-nations-elderly PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - Malnutrition and obesity are both common among Americans over age 65. There are also a host of other medical conditions from which older people and other Medicare beneficiaries suffer that could be improved with appropriate nutritional intervention. Despite that, access to a nutrition professional is very limited. Do nutrition services benefit older people in terms of morbidity, mortality, or quality of life? Which health professionals are best qualified to provide such services? What would be the cost to Medicare of such services? Would the cost be offset by reduced illness in this population? This book addresses these questions, provides recommendations for nutrition services for the elderly, and considers how the coverage policy should be approached and practiced. The book discusses the role of nutrition therapy in the management of a number of diseases. It also examines what the elderly receive in the way of nutrition services along the continuum of care settings and addresses the areas of expertise needed by health professionals to provide appropriate nutrition services and therapy. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Jennifer Lalitha Flaubert A2 - Ruth Cooper A2 - Megan Snair A2 - Sharyl Nass TI - Achieving Excellence in Cancer Diagnosis: Proceedings of a Workshop—in Brief DO - 10.17226/26505 PY - 2022 UR - https://nap.nationalacademies.org/catalog/26505/achieving-excellence-in-cancer-diagnosis-proceedings-of-a-workshop-in PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - The Board on Health Care Services of the National Academies of Sciences, Engineering, and Medicine hosted a virtual workshop to examine the current science and research opportunities for improving the diagnosis of cancer within the U.S. health care system. The workshop, held on October 6, 2021, highlighted the patient experience, the diagnostic process, cancer epidemiology, approaches to mitigate disparities and promote equity in diagnosis, novel diagnostic strategies and tools, and strategies to improve the overall system of cancer diagnosis. This workshop was the third in a series on diagnostic excellence funded by the Gordon and Betty Moore Foundation. This Proceedings of a Workshop-in Brief highlights the presentations and discussions that occurred at the workshop. ER - TY - BOOK AU - Institute of Medicine AU - National Academies of Sciences, Engineering, and Medicine A2 - Sharyl J. Nass A2 - Margie Patlak TI - Comprehensive Cancer Care for Children and Their Families: Summary of a Joint Workshop by the Institute of Medicine and the American Cancer Society SN - DO - 10.17226/21754 PY - 2015 UR - https://nap.nationalacademies.org/catalog/21754/comprehensive-cancer-care-for-children-and-their-families-summary-of PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - Childhood cancer is an area of oncology that has seen both remarkable progress as well as substantial continuing challenges. While survival rates for some pediatric cancers present a story of success, for many types of pediatric cancers, little progress has been made. Many cancer treatments are known to cause not only significant acute side effects, but also lead to numerous long-term health risks and reduced quality of life. Even in cases where the cancer is considered curable, the consequences of treatment present substantial long-term health and psychosocial concerns for children, their families, their communities, and our health system. To examine specific opportunities and suggestions for driving optimal care delivery supporting survival with high quality of life, the National Cancer Policy Forum of the Institute of Medicine and the American Cancer Society co-hosted a workshop which convened experts and members of the public on March 9 and 10, 2015. At this workshop, clinicians and researchers in pediatric oncology, palliative, and psychosocial care, along with representatives from the U.S. Food and Drug Administration, National Cancer Institute, Children's Oncology Group, pharmaceutical companies, and patient advocacy organizations, discussed and developed a menu of options for action to improve research, quality of care, and outcomes for pediatric cancer patients and their families. In addition, parents of children with cancer and pediatric cancer survivors shared their experiences with care and provided poignant personal perspectives on specific quality of life concerns and support needs for children and families across the life spectrum. This report summarizes the presentations and discussion of the workshop. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Margie Patlak A2 - Cyndi Trang A2 - Sharyl J. Nass TI - Establishing Effective Patient Navigation Programs in Oncology: Proceedings of a Workshop SN - DO - 10.17226/25073 PY - 2018 UR - https://nap.nationalacademies.org/catalog/25073/establishing-effective-patient-navigation-programs-in-oncology-proceedings-of-a PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - Delivering high-quality cancer care to all patients presents numerous challenges, including difficulties with care coordination and access. Patient navigation is a community-based service delivery intervention designed to promote access to timely diagnosis and treatment of cancer and other chronic diseases by eliminating barriers to care, and has often been proposed and implemented to address these challenges. However, unresolved questions include where patient navigation programs should be deployed, and which patients should be prioritized to receive navigation services when resources are limited. To address these issues and facilitate discussion on how to improve navigation services for patients with cancer, the National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a workshop on November 13 and 14, 2017. At this workshop, a broad range of experts and stakeholders, including clinicians, navigators, researchers, and patients, explored which patients need navigation and who should serve as navigators, and the benefits of navigation and current gaps in the evidence base. ER - TY - BOOK AU - National Academy of Medicine A2 - Sarah M. Greene A2 - Peter Embi A2 - Meg Gaines A2 - Beverley Johnson A2 - Neil Powe A2 - Jeffrey Schiff A2 - Bruce Siegel A2 - Emily Stewart A2 - Consuelo Wilkins TI - Priorities on the Health Horizon: Informing PCORI's Strategic Plan SN - DO - 10.17226/27109 PY - 2021 UR - https://nap.nationalacademies.org/catalog/27109/priorities-on-the-health-horizon-informing-pcoris-strategic-plan PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - In response to a growing national awareness that the development and use of new diagnostic, therapeutic, and preventive interventions had been occurring at a quickening pace—one far outstripping the evidence necessary to make informed decisions about their comparative advantage—the Patient-Centered Outcomes Research Institute (PCORI) was established in 2010 as part of the Affordable Care Act legislation. PCORI is guided by the imperative to help patients, families, clinicians, and other health care stakeholders make better informed health care decisions and improve care and outcomes. To inform the next steps in its organizational strategy, PCORI enlisted the National Academy of Medicine (NAM) to leverage its deep experience in convening experts on matters of significant national importance, including its long-standing thought leadership role in the realization of a learning health system. The NAM formed a multi-stakeholder workgroup and held two virtual convenings with the objective of engaging with patients, clinicians, health system leaders, researchers, and other stakeholders from the broader health community to identify and discuss high-priority emerging issues in health, health care, and biomedical science and technology. The key messages from these meetings are outlined in the Special Publication Priorities on the Health Horizon: Informing PCORI's Strategic Plan.Given the breadth of the domains considered in the Priorities on the Health Horizon meetings—emerging technologies, social and environmental factors, optimizing value, and infrastructure—a formidable set of pressing health and health care research needs were reviewed and discussed. In addition, certain fundamental strategic priorities emerged as basic and critical to progress in the field: (1) the need to reorient research perspectives and activities to patient and family priorities and values, and in particular, those conditions that drive inequities; (2) the need to foster strategic learning partnerships across groups, organizations, and sectors; and (3) the need to build the continuous learning infrastructure to produce new insights at the pace and scale necessary for health and health care improvement.Moving forward, building the capacity to continuously improve learning and sharing throughout the system will entail stakeholders working together as seamlessly as possible. The NAM and PCORI worked together to facilitate an expansive dialogue with key stakeholders and engender trust through a focus on shared commitments to progress on improving health for all Americans in the decade ahead. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Francis Amankwah A2 - Margie Patlak A2 - Sharyl Nass TI - Addressing the Adverse Consequences of Cancer Treatment: Proceedings of a Workshop SN - DO - 10.17226/26365 PY - 2022 UR - https://nap.nationalacademies.org/catalog/26365/addressing-the-adverse-consequences-of-cancer-treatment-proceedings-of-a PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - Cancer treatment can lead to an array of significant short- and long-term physical, psychosocial, and socioeconomic consequences for patients and their families. To examine the opportunities to prevent and mitigate the adverse effects of cancer treatment, the National Academies of Sciences, Engineering, and Medicine hosted a virtual workshop, Addressing the Adverse Consequences of Cancer Treatment, in November 2020. This workshop was convened by the Academies' National Cancer Policy Forum in collaboration with the Forum on Aging, Disability, and Independence. Workshop presentations and discussions described the range of adverse effects that patients with cancer may experience across the life course, and highlighted potential strategies to improve quality of life for cancer survivors and their families. ER - TY - BOOK AU - Institute of Medicine A2 - Laura A. Levit A2 - Erin P. Balogh A2 - Sharyl J. Nass A2 - Patricia A. Ganz TI - Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis SN - DO - 10.17226/18359 PY - 2013 UR - https://nap.nationalacademies.org/catalog/18359/delivering-high-quality-cancer-care-charting-a-new-course-for PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - In the United States, approximately 14 million people have had cancer and more than 1.6 million new cases are diagnosed each year. However, more than a decade after the Institute of Medicine (IOM) first studied the quality of cancer care, the barriers to achieving excellent care for all cancer patients remain daunting. Care often is not patient-centered, many patients do not receive palliative care to manage their symptoms and side effects from treatment, and decisions about care often are not based on the latest scientific evidence. The cost of cancer care also is rising faster than many sectors of medicine—having increased to $125 billion in 2010 from $72 billion in 2004—and is projected to reach $173 billion by 2020. Rising costs are making cancer care less affordable for patients and their families and are creating disparities in patients' access to high-quality cancer care. There also are growing shortages of health professionals skilled in providing cancer care, and the number of adults age 65 and older—the group most susceptible to cancer—is expected to double by 2030, contributing to a 45 percent increase in the number of people developing cancer. The current care delivery system is poorly prepared to address the care needs of this population, which are complex due to altered physiology, functional and cognitive impairment, multiple coexisting diseases, increased side effects from treatment, and greater need for social support. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis presents a conceptual framework for improving the quality of cancer care. This study proposes improvements to six interconnected components of care: (1) engaged patients; (2) an adequately staffed, trained, and coordinated workforce; (3) evidence-based care; (4) learning health care information technology (IT); (5) translation of evidence into clinical practice, quality measurement and performance improvement; and (6) accessible and affordable care. This report recommends changes across the board in these areas to improve the quality of care. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis provides information for cancer care teams, patients and their families, researchers, quality metrics developers, and payers, as well as HHS, other federal agencies, and industry to reevaluate their current roles and responsibilities in cancer care and work together to develop a higher quality care delivery system. By working toward this shared goal, the cancer care community can improve the quality of life and outcomes for people facing a cancer diagnosis. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Erin Balogh A2 - Frances Amankwah A2 - Theresa Wizemann A2 - Sharyl Nass TI - Innovation in Electronic Health Records for Oncology Care, Research, and Surveillance: Proceedings of a Workshop SN - DO - 10.17226/26720 PY - 2023 UR - https://nap.nationalacademies.org/catalog/26720/innovation-in-electronic-health-records-for-oncology-care-research-and-surveillance PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine KW - Computers and Information Technology AB - Electronic Health Records (EHRs) are used across a wide variety of activities in cancer care and cancer research, including communication among health care team members and patients, clinical documentation and treatment planning, patient safety and quality improvement, scheduling and billing, as well as clinical research and disease surveillance activities. On February 28 and March 1, 2022, the National Cancer Policy Forum and the Computer Science and Telecommunications Board of the National Academies of Sciences, Engineering, and Medicine hosted a public workshop to examine opportunities to improve patient care and outcomes through collaborations to enhance innovation in the development, implementation, and use of EHRs in oncology care, research, and surveillance. This Proceedings of a Workshop summarizes the presentations and discussions that took place at the workshop. ER -