TY - BOOK AU - Institute of Medicine AU - National Research Council A2 - Maria Hewitt A2 - Susan L. Weiner A2 - Joseph V. Simone TI - Childhood Cancer Survivorship: Improving Care and Quality of Life SN - DO - 10.17226/10767 PY - 2003 UR - https://nap.nationalacademies.org/catalog/10767/childhood-cancer-survivorship-improving-care-and-quality-of-life PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors’ health and quality of life. The more than two-thirds of childhood cancer survivors who experience late effects -- that is, complications, disabilities, or adverse outcomes -- as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Michael M. E. Johns A2 - Guru Madhavan A2 - Francis K. Amankwah A2 - Sharyl J. Nass TI - Guiding Cancer Control: A Path to Transformation SN - DO - 10.17226/25438 PY - 2019 UR - https://nap.nationalacademies.org/catalog/25438/guiding-cancer-control-a-path-to-transformation PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - Throughout history, perhaps no other disease has generated the level of social, scientific, and political discourse or has had the degree of cultural significance as cancer. A collective in the truest sense of the word, "cancer" is a clustering of different diseases that afflict individuals in different ways. Its burdens are equally broad and diverse, from the physical, financial, and psychological tolls it imposes on individuals to the costs it inflicts upon the nation's clinical care and public health systems, and despite decades of concerted efforts often referred to as the "war on cancer", those costs have only continued to grow over time. The causes and effects of cancer are complex—in part preventable and treatable, but also in part unknown, and perhaps even unknowable. Guiding Cancer Control defines the key principles, attributes, methods, and tools needed to achieve the goal of implementing an effective national cancer control plan. This report describes the current structure of cancer control from a local to global scale, identifies necessary goals for the system, and formulates the path towards integrated disease control systems and a cancer-free future. This framework is a crucial step in establishing an effective, efficient, and accountable system for controlling cancer and other diseases. ER - TY - BOOK AU - National Academies of Sciences, Engineering, and Medicine A2 - Laura Aiuppa A2 - Maria Hewitt A2 - Sharyl J. Nass TI - Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop SN - DO - 10.17226/25043 PY - 2018 UR - https://nap.nationalacademies.org/catalog/25043/long-term-survivorship-care-after-cancer-treatment-proceedings-of-a PB - The National Academies Press CY - Washington, DC LA - English KW - Health and Medicine AB - The 2006 Institute of Medicine (IOM) consensus study report From Cancer Patient to Cancer Survivor: Lost in Transition made recommendations to improve the quality of care that cancer survivors receive, in recognition that cancer survivors are at risk for significant physical, psychosocial, and financial repercussions from cancer and its treatment. Since then, efforts to recognize and address the unique needs of cancer survivors have increased, including an emphasis on improving the evidence base for cancer survivorship care and identifying best practices in the delivery of high-quality cancer survivorship care. To examine progress in cancer survivorship care since the Lost in Transition report, the National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a workshop in July 2017, in Washington, DC. Workshop participants highlighted potential opportunities to improve the planning, management, and delivery of cancer survivorship care. This publication summarizes the presentations and discussions from the workshop. ER -