%0 Book %A Institute of Medicine %E Nass, Sharyl J. %E Patlak, Margie %T Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer: Workshop Summary %@ 978-0-309-29441-6 %D 2013 %U https://nap.nationalacademies.org/catalog/18547/identifying-and-addressing-the-needs-of-adolescents-and-young-adults-with-cancer %> https://nap.nationalacademies.org/catalog/18547/identifying-and-addressing-the-needs-of-adolescents-and-young-adults-with-cancer %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 96 %X Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer is the summary of a workshop convened by the Institute of Medicine's National Cancer Policy Forum in July 2013 to facilitate discussion about gaps and challenges in caring for adolescent and young adult cancer patients and potential strategies and actions to improve the quality of their care. The workshop featured invited presentations from clinicians and other advocates working to improve the care and outcomes for the adolescent and young adult population with cancer. Cancer is the leading disease-related cause of death in adolescents and young adults. Each year nearly 70,000 people between the ages of 15 and 39 are diagnosed with cancer, approximately 8 times more than children under age 15. This population faces a variety of unique short- and long-term health and psychosocial issues, such as difficulty reentering school, the workforce, or the dating scene; problems with infertility; cardiac, pulmonary, or other treatment repercussions; and secondary malignancies. Survivors are also at increased risk for psychiatric conditions such as anxiety, depression, substance abuse, and suicide and may have difficulty acquiring health insurance and paying for needed care. Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer discusses a variety of topics important to adolescent and young adult patients with cancer, including the ways in which cancers affecting this group differ from cancers in other age groups and what that implies about the best treatments for these cancer patients. This report identifies gaps and challenges in providing optimal care to adolescent and young adult patients with cancer and to discuss potential strategies and actions to address them. %0 Book %A Institute of Medicine %A National Academies of Sciences, Engineering, and Medicine %E Nass, Sharyl J. %E Patlak, Margie %T Comprehensive Cancer Care for Children and Their Families: Summary of a Joint Workshop by the Institute of Medicine and the American Cancer Society %@ 978-0-309-37441-5 %D 2015 %U https://nap.nationalacademies.org/catalog/21754/comprehensive-cancer-care-for-children-and-their-families-summary-of %> https://nap.nationalacademies.org/catalog/21754/comprehensive-cancer-care-for-children-and-their-families-summary-of %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 126 %X Childhood cancer is an area of oncology that has seen both remarkable progress as well as substantial continuing challenges. While survival rates for some pediatric cancers present a story of success, for many types of pediatric cancers, little progress has been made. Many cancer treatments are known to cause not only significant acute side effects, but also lead to numerous long-term health risks and reduced quality of life. Even in cases where the cancer is considered curable, the consequences of treatment present substantial long-term health and psychosocial concerns for children, their families, their communities, and our health system. To examine specific opportunities and suggestions for driving optimal care delivery supporting survival with high quality of life, the National Cancer Policy Forum of the Institute of Medicine and the American Cancer Society co-hosted a workshop which convened experts and members of the public on March 9 and 10, 2015. At this workshop, clinicians and researchers in pediatric oncology, palliative, and psychosocial care, along with representatives from the U.S. Food and Drug Administration, National Cancer Institute, Children's Oncology Group, pharmaceutical companies, and patient advocacy organizations, discussed and developed a menu of options for action to improve research, quality of care, and outcomes for pediatric cancer patients and their families. In addition, parents of children with cancer and pediatric cancer survivors shared their experiences with care and provided poignant personal perspectives on specific quality of life concerns and support needs for children and families across the life spectrum. This report summarizes the presentations and discussion of the workshop. %0 Book %A National Academies of Sciences, Engineering, and Medicine %E Aiuppa, Laura %E Hewitt, Maria %E Nass, Sharyl J. %T Long-Term Survivorship Care After Cancer Treatment: Proceedings of a Workshop %@ 978-0-309-47298-2 %D 2018 %U https://nap.nationalacademies.org/catalog/25043/long-term-survivorship-care-after-cancer-treatment-proceedings-of-a %> https://nap.nationalacademies.org/catalog/25043/long-term-survivorship-care-after-cancer-treatment-proceedings-of-a %I The National Academies Press %C Washington, DC %G English %K Health and Medicine %P 160 %X The 2006 Institute of Medicine (IOM) consensus study report From Cancer Patient to Cancer Survivor: Lost in Transition made recommendations to improve the quality of care that cancer survivors receive, in recognition that cancer survivors are at risk for significant physical, psychosocial, and financial repercussions from cancer and its treatment. Since then, efforts to recognize and address the unique needs of cancer survivors have increased, including an emphasis on improving the evidence base for cancer survivorship care and identifying best practices in the delivery of high-quality cancer survivorship care. To examine progress in cancer survivorship care since the Lost in Transition report, the National Cancer Policy Forum of the National Academies of Sciences, Engineering, and Medicine held a workshop in July 2017, in Washington, DC. Workshop participants highlighted potential opportunities to improve the planning, management, and delivery of cancer survivorship care. This publication summarizes the presentations and discussions from the workshop.